Support and Love. These are two things I’ve always known about, and always “preached” about helping others out with in whatever times of need they have. Not until what we have going on medically with my daughter did I have the occasion to feel this side (the receiving end) of said love and support.
If you know someone who is going through something you consider to be unimaginable, please reach out in love. What you don’t realize is that it will likely mean the world. I can speak from experience on this topic.
As we are walking down this road we don’t want to be on, awaiting a definitive diagnosis on what may be going on with my daughter, I thank God for His hand in this entire situation. It is evident in so many ways. My gratitude is for the people God has in my life, and for the friendships and relationships that are being cultivated, even in the midst of everything going on. God’s love, and His heart is surrounding my family. My faith and strength from God through all this literally sustains me.
There are moments, and there are times that I wonder where the strength to keep going will come from. It is during those moments where God’s presence becomes so real to me. It isn’t because of anything I’ve done, but rather because He has me surrounded by people who care. I’m learning that I’m not in this – any of this thing called life – alone. Instead, I’m surrounded by much love and support. Like I have said many times before, it’s okay to not always be okay. It’s okay to need help, and it’s okay to reach out. I step out of my comfort zone when I do, but I’m grateful that God has given me the gift of friendship and relationship.
With regards to what all is going on, several people have asked if there is anything new, or if there is any specific way to pray. Right now, we are still waiting on a definitive answer. What we know is that my four year old daughter had a high grade polyphenotypic brain tumor. She had surgery two weeks ago, and both the pathology as well as genetic results are still not giving a full and complete answer. They are leaning towards either medulloblastoma or anaplastic ependymoma. The problem is, is that her results don’t fit either one specifically. It has been said that her situation medically has presented like this before, but rarely. So, samples have been sent for additional specialist consultation, and we should have those results soon. What we know is that we are essentially looking at our worst case scenario, but with some sort of rare twist. She will be starting chemo and radiation within the next two weeks or so.
As bad as all that sounds, I want you to know a couple of things. First, we are standing in faith for her complete healing and full recovery. That said, we realize that healing comes in many forms. All of that in mind, the one thing I want to stress is that no matter what the situation, and how dire it may look at times, God is still God, and He is still Good. With that, He IS in control. I don’t always understand why, or like what is going on, but my daughter is in His hands. It is out of my control…but the beauty of it not being in my control is that it IS in His capable hands.
Thanks for your continued love and support. It’s an honor to do life alongside all of you.