Tag Archives: heaven

The Heart That Bleeds Gold

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Driven To Make Change

Some people have ice cold hearts, while others are warm and inviting. And then there are those whose hearts bleed gold. It takes the age old saying that someone has a “heart of gold” to an entirely different level. 

If you are not aware, the universal color representing childhood cancer is gold. 

Today, I met a man named Ronnie. He started Driven To Make Change. Before a couple of days ago, I hadn’t known very much about Ronnie and his heart that bleeds gold. He is a compassionate person, who – yes, has a heart of gold. His goal and mission in life right now is to raise awareness for pediatric cancer . 

He’s driving across 48 states to learn all he can about all the  pediatric cancers (139, currently known) and also to raise awareness. His hope is multi faceted. Not only does he have vision to raise funds for fighting cancer and finding a cure – he also seeks to take that deeper and further. 

He wants to aid research into the why. Cause. Find out why or how (any environmental or otherwise) these cancers form. It is then that they become preventable. 

Preventable cancer!?

It sounds like a pipe dream – but, I’ll draw your attention to medical history – so did the cause and/or cure for polio and other similar diseases. Let’s band together and turn this pipe dream into hopeful reality. Don’t tell me it’s not possible. 

Why the passion? 

I’m glad you’ve asked. My daughter Janet (Praying For Little Janet) was diagnosed with a rare (literally one of a kind) brain tumor at age four. She courageously fought brain cancer for three years, and passed away February 13, 2016. She is my why. My passion. My love. There is a giant hole in my heart that only she could ever fill. 

She is not my only why . 

There are so many people – so many families whose lives are turned upside down, in an instant – with two (not so) simple words: childhood cancer. To hear the words “your child has cancer” or “your child has a brain tumor” are game changers. They will (and should) change perspective and priorities in a huge way. Life as you know it will NEVER be the same “normal” again. Life will change. Death may happen. And that part so royally sucks. 

They are now also my why. Every family who hears those words. I fight for my daughter, and I fight for all the families affected by pediatric cancers of all kinds. 

My daughter died. My hope and prayer is that no other family, ever, has to endure this painful kind of journey. 

Pipe dream? Not forever. WE have the power to change things. It will not happen overnight. But, it WILL happen. The key is, we must advocate for our children. They deserve so much more than the 3.8% of federal funding for pediatric cancer research currently alloted. 

Please join me, Ronnie, and all those with hearts that bleed gold, in raising awareness and funds for pediatric cancer research (not only for a cure – but also to be able to pinpoint cause, and thus prevent the cancer) and share hope with the world. 

#RememberTheLove

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Denial – That Land That Leads To Hurting And Hope

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Recently, I have had much time to thing. Ponder things. One such thing includes the much sought after question – WHY!?

The other day, I was having a particularly emotional day. I talked with several people – just because I have found the value in both connecting as well as asking for help. The help, in this case, was pretty much in the form of prayer. Nothing would change the exact scenario at hand, but prayer would bring the peace and courage to face it.

As I was chatting with a friend, I was speaking about my daughter. A friend of ours is also young (she’s 10) and fighting a battle with cancer. She is losing that battle, and has only been given a short time of life left this side of Heaven. That was particularly hard for me. I looked at the similarities with my daughter’s cancer and it got to me. My heart was broken, realizing the possibility that lies ahead with us. As I was chatting with my friend, it was noted that when I spoke about this, I simply could not talk about the possibility of her dying. I would mention it and say that “things might not go how we want” or “if one day she doesn’t make it” but it was pointed out that I didn’t seem able to face it head on and talk about it. My friend asked what I thought would help to get to the point where I could look at her situation, see similarities in other situations that might not be going well, and not get upset. How could I watch a friend with a daughter who is dying, and not let it bring me down to the point that it’s depressing because I liken it to our own situation.

It was a hard thing to ponder, much less identify. I did come to the realization that I was attempting to live in a land of denial. In my head, I realized that the cancer she is dealing with does not hold a good prognosis. She may or may not live and have the opportunity to grow up. However, I never have really dwelt on that. Nor had I ever allowed it go to from my head to my heart. I only saw it as a possibility. What I did not see it as was a possible reality. I had some pretty in depth conversations. Just looking at the facts, and realizing there is a possibility she could die was extremely hard. However, it has been helpful in that way to not live in denial. To not think and dwell on it to a point it brings me down is hard, but necessary. Well, it’s not necessary to dwell, so much as realize the possibility.

One huge thing for me to realize – even though I knew it – was that just because another child is dying (or even that seven or more children die every single day) as a result of childhood cancer, does not mean that will be the end of our story. Yes, my four year old daughter could die. However, having cancer is NOT an automatic death sentence.

The hardest part is to realize that death is a possibility. It is hard to fathom, and impossible to understand. However, just because it is possible doesn’t make it probable. We will pray for God’s will. I seriously hope His will includes her being completely healed – from the inside out. I hope His will includes her living, not dying – and going on to grow up and live a long life. I will not, however, live in fear and dread of the opposite. If, for whatever reason, my daughter does not “win” this battle with cancer the way we want to see it won, it does not mean God isn’t in control. My faith and prayer is for her healing. I pray that healing takes place while she is on earth. If not, my joy will come from knowing she beat me to Heaven, and will be able to spend time and be in the arms of Jesus. That’s actually a sweet and heartwarming thought. No, I don’t want it to happen, and I’m certainly not rushing to get there myself. It’s just a beautiful thought when you are able to look at death as not the final goodbye, and instead as the next segment of a beautiful journey in a different place.

If you are facing this, or any other similar medical diagnosis and just don’t know how to handle it, please feel free to connect with me. I have, by no means, got this all figured out. What I do have is peace. I have peace knowing that the outcome isn’t guaranteed – good or bad. I have peace knowing that my life, the life of every member of my family, is in His hands. The maker of the entire universe has us in His hands.

Regardless of your situation, I pray you can come to know the same peace. May the God of all creation hold you today.