Tag Archives: praying for little Janet

Have You Been To A Concert That Rescues And Saves Lives? 

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This is a picture taken at a concert that began with “For His Glory” (which is more than just a band, and then followed by “The Great Romance” – who already held a very special place in my heart.

Have you ever been to a music concert that saves lives and rescues people? I have. Two nights ago. 

I had an opportunity that had my stomach in knots. A concert. No big deal,  right?!  In my case, not right. Let me explain… 

My daughter passed away in February after a three year battle with brain cancer. During the first year of her fight – on a cool and crisp sunny October afternoon, Matt Vollmar (Lead singer of The Great Romance -TGR) came to visit Janet during one of her many inpatient stays at the hospital. He sang an incredibly meaningful song, Bigger Than The Odds. The song speaks of A God, who is bigger than the odds. Janet fell in love with that song, the artist who sang it, and the band that plays it. She’d take much pride in requesting and hearing it played on the radio. Every time TGR was in concert anywhere within a reasonable driving distance, we made it a point to be there. It would be an understatement to say they meant a ton to us. 

Case in point, Matt Vollmar was one of a small handful personally asked to sing at Janet’s Celebration of Life (funeral) service. He sang an couple of her favorite songs, fitting for the occasion. 

This concert was the first concert I’d been to since she passed away. If you knew much about me, you’d know I’ve been to several concerts in recent years – at least 95+% of them, with my daughter in attendance. She loved music. Music has such a message, and even as a young kid, she “got” it. 

I had virtually no idea how hard, yet how impactful this concert would become. 

If you look closely, these are several of the pictures from the set where these guys/gals played/sang.

I walked in as the first group, For His Glory, was being introduced, and began to share about a cause that they support – a cause near and dear to their hearts. They seek to offer hope, healing, and practical help to people and ministries worldwide. In this instance, they spoke passionately about human trafficking, and connecting them with true and lasting, sustainable hope. The kind of hope that rebuilds lives, and communities. They have a global market, where they sell goods made by these rescued girls, to help them continue with sustainable income. I saw some of these beautiful items – baby bibs, any weather scarves, winter scarves, greeting cards, wooden sculptures, jewelry, etc. Incredible talent. 

Their mission is one near and dear to my heart as well. I was astounded to hear their heart and words in support of this cause. 

As they played, their songs spoke to my heart. I listened, and I cried. It simply couldn’t be helped. They were beautiful tears – not marked with sadness. They were my heart connecting with what felt like the very heart of God. I knew, in those moments, that I had to connect with these people. That is an indoor process at the moment, but their mission is also my mission. I’ll look forward to updating again as friendships form, and differences are made in our world. 

At the completion of their set, it was time for The Great Romance to take the stage. I didn’t know what to expect, emotion wise, but I didn’t have the slightest clue the difficulty level either. 

Look closely. These are some of several shots taken during this concert.

Their first song was a light hearted (one of a few) favorite of Janet’s. I had tears, but I was okay. The next song grabbed my heart, and was one Janet loved, got the meaning of, and was also sang at her Celebration of Life. Disappear. The basis of this song is asking “if I were to disappear, would there be footprints on the floor” – asking if the person wasn’t there any longer, would they leave a footprint on this world – a legacy of something more. At seven years old, my daughter knew she was doing, but she KNEW she would leave a legacy of love. She was and still is right. So yes, that song got me. A few other songs hit a spot, but nothing came close to the deluge of emotions that poured out of my eyes in the form of tears. I lost it. Not on a horrible way, but the tears freely streamed down my face, giant and very real crocodile tears. They were healing while heartbreaking, simultaneously. I was just enveloped with God’s love, but sported a shattered heart – knowing how much that song meant to Janet, and wishing I could watch her beautiful bald self, dancing to it time and time again. It hurts to not have her here – but my God – I wouldn’t trade having such beautiful and love filled memories of a life – seven years of a life – well lived. 
My daughter truly LOVED more in her seven years, than many will live in an entire lifetime – one that spans into adulthood, and old age. She was robbed of so much, but it NEVER put a damper on her smile. When I grow up, I wanna be just like her! Ha! 

To everyone who continues to connect with Janet’s story, and our ongoing journey, I want to thank you for the continued thoughts and prayers. Please and thank you for them continuing! 

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The Letter I Wish She Could Read

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To anyone who may read this – this is going to be a letter I write to my 7 heart old daughter Janet. She passed away three day before Valentine’s Day, 2016, after a three year fight with brain cancer.  I have no idea how long this will be, but I have so much on my mind. You don’t have to read it – but do please feel free. I am not going to edit or even change grammar or spelling errors because, frankly, I don’t want to. I’m writing on/from my cell phone, and so God knows (and so do several of you) that I’m probably going to say any number of things that might not compute! I love you all. Thank you for being here. And for all you love, support, thoughts and prayers! 
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Oh, precious Janet! I love you so much, sweet girl. I will always and forever #RememberTheLove. Like I told you before you took your final breath this side of Heaven, we do miss you like crazy – like there’s no tomorrow! But, just like I followed that up with this then, I will now say that we are okay. The reason we’re okay is because we have each other. We still have you here with us, just only in our hearts. 
I’m not going to lie – sweetheart. This has been the hardest I’ve ever felt. Some days are so much harder than others. You know what I’m learning? That’s just the way it is. I do know this, though. If you were able to, you’d give me a gigantic squeezy hug. You did those the best. You’d tell me it’s okay, and you’d wipe away my tears. I know this. Sorry. I’m just missing you. 
I’ve learned so much about myself, other people, life, and even God. I think you’d be proud. I hope so, at least. God knows I’m also not perfect. But I know you’d remind me how much you love me and no matter what, that wouldn’t change. I said that to you all the time – and you picked up on or, and knew when to say it to me. 
I’m so so sorry we couldn’t do more to save you. I know it’s not my fault. But I still wish. So much. I just feel so broken. My heart hurts so much sometimes. I hate this pain, and how much it hurts. But them I remember that it hurts so bad because we shared so much love. The love you shared with me will forever be in my heart. 
I’ve been listening to a lot of music. I know how much music meant to you. It makes me smile. 
Guess what else? If you were sitting beside me, I know we’d talk about this. I’m learning a lot right now, especially about God, and my faith. Also about love, and compassion – and this messy thing called messy grace. I learned so much about this thing called messy grace at an incredible place – a blog written by my friend Steve. There is also a really neat messy grace community Facebook group that are just a bunch of people that love people just where they are. That helped me too! They just love people really well, and they share so much of this messy grace with everyone. I mean it, Janet. EVERYONE! I bet that would make you giggle. Just all this talk about messy grace! Hehe. 
I wanna tell you a little bit about the things I’ve been thinking about and realizing. I’ve been telling Jeremy and James this, so I’d tell you too. 
I’m starting to see just how much God loves us. I’m finding out a lot about my own faith in God. I know, you’d smack my hand if I told you I wanted to punch God in the face some days. I’m not doing to lie, baby. It makes me so mad at Him sometimes because you weren’t healed here on Earth. But, I’m so so so happy that you got to meet Jesus. I know that even just hours before you took that last breath, you smiled because you knew it was almost time. 
Anyway, I’ve decided to live my life in a little bit different of a way. I’ve decided it’s time to own my faith. What that means I’d I know what things I believe, but I just realized I didn’t always know why. Do you understand? I know you do. I don’t want to have what’s called blind faith. I just mean that – you know, when a person is blind, they can’t see. Well, I don’t want to believe things with my eyes closed. I want to believe them for myself – not because someone else tells me to. It’s more important than that. 
One of the biggest things that my heart needs, and wants other people to understand, is love. Love can move mountains. I bet that would make you laugh – silly mommy. But live is such a big thing. I know you knew that though. 
The world we live in right now needs so much more love. One thing going on right now is so many people aren’t showing people love very well. I know, you would ask why, and it would make you sad. Baby, it makes me sad too. 
One thing going on is the LGBTQ+ community. I know, those letters sounds silly. What those letters are talking about are lesbian, gay, bisexual, transgender, queer, and the plus is for all the other things in between. Lesbians are when girls like or love and want to marry other girls. Being gay is like the same thing, but with boys who like other boys. Bisexual is when a boy likes boys and girls, and also if girls like girls or boys. Transgender people are people who feel like they were born in the wrong body. They might be a person who was born with boy parts, but has always felt like that was a mistake. And even sometimes girls are born with a vagina, but they always feel like they were supposed to be a boy. Queer is kind of hard to explain. Not really, I don’t guess. It just means anything but straight. Straight people are when a man loves a woman, or a woman loves a man. But, when a person is queer, they can like it love anyone. The Q also can stand for questioning. For a lot of people, there is a time when they start to question and explore who they think are nice and that they might want to get to know better and maybe love. 
This community is in the news a lot lately. It makes me sad, and I know it would make you sad too. One thing that makes me sad is that people don’t treat people very nicely. I think you’d be super proud to help me with this next thing. I know how much loving people means to you. You would want to help me love people well. ALL people. 
See, you know we go to church. I have figured something out, sweetheart. Not our church, but so many different churches aren’t doing very well in how they love people. I know, you probably can’t understand that! It’s crazy! Cause, God wants us to love every single person – even if they look different, or live different, or if they marry differently. But so many people don’t love people like that. They only love the people they understand. It makes me sad about this LGBTQ+ community because they are very special too. The Bible does talk about homosexuality (that is when two people who are either both boys or both girls love each other and want to be a family) and says in some places that it’s wrong. A lot of churches even tell them that they can’t be a Christian because of the way that they love people. 
I’m going to tell you this. I don’t really believe that’s true. I know there are a lot of people who may not like that I say that. And they may not believe it. Some may even get mad. But, I think they can come to Jesus and all Him (like you did) to come into their heart and be a part of their life. What happens after that is between that person and God. I’m not God. (I know! That’s funny for me to say!) But, I’m not Him and I can’t really tell you how He will act or react. But what I do think is that He will love them very well. You know how I feel about God, and when people want to know Him more. He welcomes people right where they are. That is what I think. 
I want to help people, all people, even in the church to love all people well — not just the people that they agree with. See, I’ve told you this so many times. As people who love Jesus, (we call them Christians or Christ followers) we are asked (by God Himself) to be like the hands and feet of Jesus. Kind of like if Jesus was here, we should act how He acted. Even to people we don’t think deserve love. When Jesus was alive as a person on the earth, He would be deleted with so many people. He loved people well. He would even hang out with really sick people, people who would break the law, and even really mean people. Just like I told you a lot, Christians need to act like Jesus because sometimes we’ll be the only Jesus they might ever see. We need to act like him, and treat people like He would. It makes me so happy when people really do that. 
So, I just think everyone, even and especially Christ followers, need to be known by how we love people, not by all the things don’t like. It’s all about the love, and I hope so many more people can start to #RememberTheLove. With ALL people. 
Janet, I love you more than The World – to the moon and back. Your Daddy, James and Jeremy also miss you so much. We all do. People we’ve never even met love and miss you! Oh, and I was looking at some special notes that your friends from school wrote to you when you were here, and even some notes from every single kid in the first grade work you. That miss you so much too! Evie. I know how much you loved her. I do too. Her whole family is just amazing. Every time I see Evie, I get a great big squeezy hug. She always tells me how much she loves you, and misses you. Do you know how happy that makes me? I’m so happy she likes to give me hugs. Oh, did you know, she cut off her pretty long hair so she could donate her hair to another little person like you were. I know why both of you got along so well. I hope that we can stay friends with her whole family, forever. Me and Jeremy got to go with her to get her hair cut. I will share pictures here after I make sure her mommy doesn’t care. 

You always knew how much you were loved though. So these special people like here in your page (who I love so so much too) also pray for our family all the time. I know I’d make it somehow, but you being in Heaven is even bearable because of all these friends and all the people who love us, and who pray for us. I know that makes you happy too!
I guess I will stop writing now. I want you to know how much I love you, and I always will. I miss you, baby – but I’m smiling now. I’m so happy that even though you were here with us on earth for only seven years, I’m so proud to be your mommy. You James and Jeremy make me so happy. I’m smiling right now because I remember so many really happy and special times. I love you! Forever!

A Time And A Season For All Things

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This picture is one I haven’t always as freely shared. It, however, is a beautiful moment in time. A moment that I have come to cherish so much more than words could ever explain. This little girl blessed lives, mine especially, in tremendous ways. There isn’t a day that goes by where I don’t miss her smile, hey love, and her “squeezy hugs” she so lovingly shared. I shared the following on her page, and I’d like to share it here as well. I feel these words are important enough that ALL people need to hear them.

I haven’t been silent here on Janet’s page because I wanted to – more because I needed to. Life just kept happening in a way that I had to take a step back, reflect, and just be. I know this is an incredibly beautiful community. A place fill of so much love. You all understand the concept of what #RememberTheLove really means.

Friends, I’d be lying if I said there wasn’t an element of brokenness also as to why the absence. As you can imagine, life isn’t ever again going to be what it once was – full of her bright, love-giving smiles and hugs. This, alone, breaks my heart. But, that’s not to say that life doesn’t hold incredibly precious moments.

I will say this also. Both Janet’s life and also her death have taught me powerful lessons on life and love.

You see, I’ve often mentioned the value of another person’s time and the true gift that it’s friendship. It is simply irreplaceable.

I’d like to share a “case in point” example of this scenario in action. What I want to showcase is that – though there is pain attached to these memories and events – there is also an incredible amount of comforting love.

In the months and even years leading up to her death,  so many people surrounded us in love. As those years turned to months, and the months then turned to weeks – a different kind of people, new and deepening friendships emerged. The last two weeks were beautiful in so many ways. People we never expected became close, like family. They were welcomed with open arms. Desperately needed in those final moments. And, they were there.

In the weeks, now months since Janet passed away,  there has become yet another shift. I have come to realize that some of those friendships were built for just a season. That season, and sadly nothing more – whereas, some of these same friendships have stood the tests of time – and also including death and grief.

There have been many who uttered words that I’ve found myself only wishing they meant – I’ll be here for you – any time, day or night. But, even in those times, I sit back and breathed it all in. I take those (sometimes painful) moments, and I remember whatever season someone said this to me in – thankful again for whatever part they played in our story.

I will tell you this – it is for these reasons that I don’t as often say these words to people. When I do, you can rest, assured that I mean what u say. That kind of offer won’t ever come with an expiration date. Perhaps this is because I know the intense pain of needing someone who once filled a very special place – it maybe just because I love people and see the inherent value of human life.

Whatever the case may be – I want to thank you for the part you’ve played in our journey – before or after Janet passed away — even if you are one who (consciously or otherwise) walked away when you didn’t know how to handle things. This (inaction) doesn’t define the purposeful and special times we did share.

You be you. There’s no-one more qualified to play your part. Just also allow me to be me – learning and growing, grieving and loving. That, after all, is what so much of life is about. To live and be loved.

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And, friends, I meant every word – both there, and here. It is with sincere gratitude I say thank you for sharing and walking through this life with me. I cannot do it alone.

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A Time And A Season For All Things

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This picture is one I haven’t always as freely shared. It, however, is a beautiful moment in time. A moment that I have come to cherish so much more than words could ever explain. This little girl blessed lives, mine especially, in tremendous ways. There isn’t a day that goes by where I don’t miss her smile, hey love, and her “squeezy hugs” she so lovingly shared. I shared the following on her page, and I’d like to share it here as well. I feel these words are important enough that ALL people need to hear them.

I haven’t been silent here on Janet’s page because I wanted to – more because I needed to. Life just kept happening in a way that I had to take a step back, reflect, and just be. I know this is an incredibly beautiful community. A place fill of so much love. You all understand the concept of what #RememberTheLove really means.

Friends, I’d be lying if I said there wasn’t an element of brokenness also as to why the absence. As you can imagine, life isn’t ever again going to be what it once was – full of her bright, love-giving smiles and hugs. This, alone, breaks my heart. But, that’s not to say that life doesn’t hold incredibly precious moments.

I will say this also. Both Janet’s life and also her death have taught me powerful lessons on life and love.

You see, I’ve often mentioned the value of another person’s time and the true gift that it’s friendship. It is simply irreplaceable.

I’d like to share a “case in point” example of this scenario in action. What I want to showcase is that – though there is pain attached to these memories and events – there is also an incredible amount of comforting love.

In the months and even years leading up to her death,  so many people surrounded us in love. As those years turned to months, and the months then turned to weeks – a different kind of people, new and deepening friendships emerged. The last two weeks were beautiful in so many ways. People we never expected became close, like family. They were welcomed with open arms. Desperately needed in those final moments. And, they were there.

In the weeks, now months since Janet passed away,  there has become yet another shift. I have come to realize that some of those friendships were built for just a season. That season, and sadly nothing more – whereas, some of these same friendships have stood the tests of time – and also including death and grief.

There have been many who uttered words that I’ve found myself only wishing they meant – I’ll be here for you – any time, day or night. But, even in those times, I sit back and breathed it all in. I take those (sometimes painful) moments, and I remember whatever season someone said this to me in – thankful again for whatever part they played in our story.

I will tell you this – it is for these reasons that I don’t as often say these words to people. When I do, you can rest, assured that I mean what u say. That kind of offer won’t ever come with an expiration date. Perhaps this is because I know the intense pain of needing someone who once filled a very special place – it maybe just because I love people and see the inherent value of human life.

Whatever the case may be – I want to thank you for the part you’ve played in our journey – before or after Janet passed away — even if you are one who (consciously or otherwise) walked away when you didn’t know how to handle things. This (inaction) doesn’t define the purposeful and special times we did share.

You be you. There’s no-one more qualified to play your part. Just also allow me to be me – learning and growing, grieving and loving. That, after all, is what so much of life is about. To live and be loved.

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And, friends, I meant every word – both there, and here. It is with sincere gratitude I say thank you for sharing and walking through this life with me. I cannot do it alone.

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Learning To Love The Lemonade

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Have you heard the age-old saying “When life gives you lemons, make lemonade” or have you been fortunate enough to not hear that comment at every turn – especially when life isn’t so awesome!? Don’t get me wrong. I believe this statement is a good thing to remember – to look at the bright side, and not always dwell on the “lemons” that life hurls towards you.

I’d like to share somewhat of a life update, and give you a very practical update on how you can enjoy the tasty lemonade, even in the middle of sour lemons!

For those unaware of our family situation, my daughter has battled a rare and aggressive brain cancer. She had a brain tumor that was surgically removed, and then followed through with six weeks of daily radiation. After the completion of radiation, she underwent a high dose chemo therapy regimen. We’re ecstatic to say that our five year old daughter has completed treatment. At the end of treatment, her MRI/scans showed no evidence of the disease. She was deemed “cancer free” and we celebrate! We have scans coming up in two weeks to verify that she remains cancer free, and no recurrence.

Watching my child fight cancer has been the single most difficult thing I have ever walked through. As such, I have also learned to CHOOSE to see the good in things…to see a bright side in a dark room. So, let me share a little story with you.

As a “cancer kid,” my daughter was connected with Make A Wish. She was given the opportunity to make a wish. She could dream big. Her wish, like so many other little kiddos, was to go to Disney World, and to get the opportunity to meet the “real” princesses. We actually just went out of town last week for Janet’s wish trip. We did not post openly, or share online until our return. We were not trying to hide anything, but rather security conscious. We opted to not share openly so our house wasn’t a target for those who would seek to do harm. We are back now, and updates – we have plenty! This post, in fact, will be a summary of how things, even amazing things like a wish trip, can sometimes not go as planned — and how you can make a conscious decisions to make the lemonade instead of sulking and drowning in the sorrows of what could have been.

I would like to take you back to the day we left. That day started off magically. Our family was picked up and escorted to the airport in a limo! The awe of it all was precious to watch. The amazement in the children’s eyes was priceless. As we were whisked away, we just enjoyed the moment. We were all together as a family, and were at the beginning of what was pegged to be a magical vacation. As we got to the airport, but before boarding the plane, we noticed a small rash on one of our son’s wrists. Nothing big, but we kept an eye on it. We thought perhaps there was a couple of bug bites. That’s all it looked like. By the time we arrived in Orlando, it had spread a bit. As we checked into our magical village, Give Kids The World, we noticed it had continued to spread. The only troubling factor was that it spread all over his entire body, the palms of his hands and soles of his feet included. That evening, we contacted his pediatrician, and were urged to go to the local emergency room. So, we went to Arnold Palmer hospital for Children. Thankfully, we met some amazing and kind people. But, true to form as it seems to go with our family and medical “issues” – they were a little bit baffled by what was going on. His lymph nodes were a bit swollen, but that was chalked up to a recent strep throat infection. He’d been on antibiotics, and initially they thought a possible medication reaction, but that seemed to be also incorrect. They made mention of leukemia and also Rocky Mountain spotted fever, but said both were extremely unlikely, as there wasn’t other tell tale symptoms accompanying his rash. They also said it would be pointless to test at that point, as he’d so recently had the strep infection. We had four different doctors, and three separate nurses come by to check him out. They were baffled, but weren’t overly concerned. That said, there wasn’t much they could do, but did give us benedryl and send us on our merry way. We were told not to go out in a whole lot of public places for at least the next day or so, and until his rash started getting better not worse. So, that is what we did. We kept him home while his sister and brother went out and about and did a few things. We had some good time to bond, and just rest and relax together. While that started our trip, that would not bring us down.

The weather. We anticipated Florida being hot and sunny. We definitely got the first half of that equation. From the moment we got off the plane, we noted how muggy and hot it was. We also surmised it would likely rain or storm soon. What we didn’t know was just how much of our trip would be covered by this kind of weather! That first evening, we had a severe thunderstorm warning, along with a flood warning. We remained safe, but that was not the most fun time ever. When there was a break, I took the munchkin (Janet’s brother) to the hospital. That next morning, she and her brother went with their daddy to have some fun. There was a playground that is a life sized Candy Land play area. They were very excited to go there, but unfortunately it was closed due to inclement weather – previous, and evidently what was to come. So, they had a variety of other mostly indoor fun.

The next day was pretty much a repeat of that first day, weather wise. There were severe storms, and lots of lightening/thunder. At this point though, we were determined to not allow the weather to get the best of us. Jeremy’s rash was looking better as well, and so we made the trip to the Disney parks. We went to Epcot to start our adventure. Unfortunately, a decent amount was closed due to the weather. This, however, would not stop us from having fun and making those special memories. We had a blast, and got to experience some pretty cool Disney magic. Again, the weather prevented some of the attractions from working. A show or two were cancelled because they were solar powered, and there just was too much cloud cover to allow for enough energy and such. No worries, we’d still keep on keeping on! That evening, we made the decision to stay until the park closed, and watch the light / fireworks show. That was spectacular. Thankfully, the weather held off long enough to really enjoy that, and to get back to the vehicle. The light show mixed with the beautiful fireworks were awesome – and just the perfect mixture of fun to put a kid TO SLEEP!! Janet was out like a light – for the majority of the show. She was exhausted. Her little body isn’t used to so much activity. She was okay, just tired. We did take lots and lots of pictures, and video recorded the entire thing. We will watch it with her later. She seemed just fine with that idea!

The next day, and for the three days that would follow, we had more storms and rain. Lots and lots of rain. In fact, the first day we saw the sun peeking out of the clouds was the day before our departure. Not to worry. We learned to sing and dance in the rain – literally and figuratively. We went to Downtown Disney. Janet went to the Bibbidy Bobbidy Boutique, where she had her makeup and nails done, and was transformed into a little princess. Her princess makeover also included having her hair done. Well, she was concerned because she has virtually no hair. That was not a worry, however. The fairy helpers were so kind and had the perfect wig to complete her beautiful new look. She got to be princess Aurora as Sleeping Beauty. To watch her excitement through the process brought (happy) tears to my eyes. She knows without even the shadow of a doubt that she is beautiful, inside and out — and that hair isn’t the make or break point in being beautiful. She did, however, quite enjoy the wig and new look. She enjoyed the glamour and excitement of being a princess. She got to wear her wig, new dress and wand around for all to see. She even perfected the princess wave. That lasted for approximately ten minutes – until the wig was scratchy, and she wanted it off. No worries. She was beautiful beyond words, and was having fun. From there, we got to go run through the rain for a Disney princess photo shoot! We could have complained because of the crazy amount of rain, but we opted to have a good time, despite the stormy weather. She had her pictures taken without the wig, and was so happy to do so! After all, it captured HER right now…at this moment…with the fuzzy new hair she’s currently sporting.

From there, we went to a glamorous lunch. Well, that was the theory at least. In reality, it was overpriced, overcooked and not worth it. However, it was Disney, and we weren’t going to let over-priced less than exciting food ruin the rainy day. Instead, we let the kids get special drinks (Italian sodas for one, chocolate milk for one, and cranberry juice for the princess) and just enjoyed each other’s company.

The next day, we went to Universal Studios. We figured that would be a great place when the weather was still supposed to be rainy. We were told most of the attractions were either inside or under cover. And they were. It was the distance BETWEEN them that made us realize that it may or may not have been the best option. It was fine, however. We got to go on several rides and saw several attractions. There will be lots of pictures and videos to come. There were only a few rides that we took that Janet could not ride, due to being little. With this said, it was likely for the best because she’s too young to enjoy or not be scared by some of them anyway. We were able to just relax and spend time together as a family.

The following day was spent at Disney’s Magic Kingdom. One thing that I was determined we’d share as a family was “It’s a Small World” ride/attraction. I did that with my family when I was very little, and I wanted to share this magical experience with my own family. So, that was actually the first thing we decided to do at Magic Kingdom. We boarded the boat, and had a thrilling and relaxing little adventure. Janet lit up, and was in awe of every part of the ride. Her brothers even had a great time! When she was looking one direction, and her brothers thought she was in danger of missing something – they’d make sure she turned to look. We have lots of pictures, and also video from that experience as well. From there, we went to the big carousel. She and her brothers all wanted to ride a horsey. On our way to the entrance, we ran into a princess. She met Janet, and learned that we were there for her Make A Wish trip, and she took us just across the patio area to a very special spot – with the Magic Kingdom castle as a backdrop. That was neat. She had an onlooker use my phone to capture the picture, so I could be IN the picture WITH the kiddos. That was so neat. We then rode the merry go round. From there, we went to the Princess autograph and picture taking adventure. Janet got to meet the princess from Frozen, as well as Aurora. It was very neat for her, and for all of us. Pictures, of course, are coming! We went on lots of rides that day, and spent much quality time together. The kids all really enjoyed both Thunder Mountain and then Splash Mountain. After that, and to conclude our fun for the day, we took the train back to Main Street, so as to experience seeing the park from the train as a vantage point. That was also a neat experience.

Walking. Together, we did lots of walking. (We did have a stroller to use for Janet, and she was allowed to have her stroller function as a wheelchair when needed because she lacked enough energy to do a full day of fun, much less walking.) That came in quite handy, truth be told. There were times she wanted to be strolled, and there were times she wanted to be held/carried. There were not that many times that she actually wanted to walk. That was okay though…we took turns holding her, or letting her ride. Through it all, we were grateful to be there, and for the opportunity that had been afforded to our family.

Our final day, we had a flight late in the day, so decided to make one more adventuresome day. We went to Sea World. Though we didn’t have a full day, we got to see dolphins and flamingos. In all honesty, we weren’t able to go on a lot of rides, as Janet was too small for much of it, and we didn’t want to be drenched. So, we just enjoyed the surrounding area of the park, relaxed at an underground cove, and watched dolphins from below ground. That was a really cool experience.

Sadly, it was time to head to our departure. I wish I could tell you that it was an exciting time. The airlines welcomed us as a Make A Wish family, and that was neat. We had help when needed, and finally got to our gate for departure. As soon as we took our bathroom break, and got to our gate, it was time to board. We boarded and got comfortable. One disappointing thing we discovered when we landed was that one of our carry on bags had been misplaced, and likely left at the departure gate in Orlando. So, that was lovely. It was an important carry on, and included the kids and my medications. Thankfully, we have extras, and have filed the report to hopefully be reunited with our missing bag soon. We’re hoping this is a quick process. There were meds, kids toys, and some spare clothing in that mix. After baggage claim, a nice man greeted us, and took us off to the limo. We completed our Make A Wish trip with a limo ride home. It was beautiful, neat, and overall – amazing. We weren’t happy the magical trip had concluded, but were extremely happy to see our home.

That was until we walked inside. It was fine…or at least seemed that way. As we flushed the toilet, and attempted to refill my water bottle. It was at this moment that we discovered that the water had been cut off in our absence. We had made the payment online, and instead of that working, it evidently hadn’t gone through after all. So, yeah – that was a lovely welcome home surprise. Again, it was another opportunity to sip on the freshly squeezed lemonade. First thing this morning, we contacted the water company, and needed to go in person to make the payment. They assured us it would be turned on quickly, and apologized for the welcome home the way that it was! It wasn’t a bad transaction, and connecting with them wasn’t a hard process. It was annoying to have to go through, but hey – now we have water again. As we were trying to get them paid, we noted that the card we were using was denied. It turns out that having fraud protection is a great thing. Since there was questionable activity (we traveled outside our home and adjoining states) our accounts were temporarily frozen. I do say it was good to have this, because we realized that if our stuff had actually been stolen, having that protection in place is priceless. Just not when trying to get life back to normal, and payments processed! Not to worry, we did get that all taken care of. Now we have water again!

What was truly beautiful was watching our kids have fun – together – without the worry or concern of radiation, chemo or a hospital stay. Just watching my little girl, and her brothers be KIDS…kids being kids….that was and is priceless. So, while life gave us lemons, we enjoyed the lemonade.

I’d like to personally say thank you for the continued thoughts and prayers surrounding Janet, this trip, and our entire family. We are sincerely grateful for each and every person who connects with this blog and also Janet’s Facebook page. (Found at http://www.facebook.com/prayingforlittlejanet)