Tag Archives: child loss

The Date That Would Alter Realities

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 This is the face of hope…of courage…of faith. This is my beautiful, then 4 year old daughter, Janet. Until this day, she had never had a hair cut in her life. Cancer treatment would take her hair away, and eventually her life. But, the smile you see here – it never really faded. She had a smile that could melt an iceberg.

This day in history. On some calendars, it is merely but a day. On mine, it will forever mark the day (four years ago today, if you’re reading this in 2017) – that our lives changed forever. It was this day, 2013, that our sweet little Janet was diagnosed with a brain tumor. That was the day that life as we knew it – it would never be the same. The normal we once knew, would never be heard from, or seen again.
 
From that day forward, however, we would also learn an indescribable love.
Yes, this journey would become not a sprint, but a marathon. A journey of epic proportions. A journey so painful, it is hard to breathe some days…but so full of love. It would be the beginning of our journey fighting childhood cancer alongside Janet. She was so very loved, and never alone — and knew both of these things to be truth.
 
With all the love in the world, it’s still a journey marked by intense pain and heartbreak. This day, 2013, she was diagnosed with a brain tumor…and three years later, she would breath her last breath this side of Heaven. Friends, I hate the fact that this is our reality. It shatters my heart, and I wish with everything I am that life wasn’t this way.
 
But, it is…and here we are. Continuing to breath, and continuing to have a heart that beats. I made some statements and promises to Janet just before she died. I told her that we were going to miss her like crazy, like there’s no tomorrow…and that it would hurt when she was gone, but that we would be okay, because we’d be together. I did tell her that we would ALWAYS #RememberTheLove. And, that is a promise I will never break.
 
For those of you following, and who share love and support – and also prayers, it is with heartfelt gratitude that I say thank you. Please, please don’t ever stop.
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What My Broken Heart Wants You To Know This Mother’s Day

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As the mother of four children, I say Happy Mother’s Day. To those of you scratching your head, wondering if I can do math, let me explain.

I have four children. I have two boys who I’m incredibly proud of. Two boys with so much to offer the world. Two boys that keep me going. Then I have a little girl we never got to see take a breath this side of Heaven. Many don’t consider a baby lost during pregnancy to be a child. But, from the moment that little baby started growing inside me – from the moment that heart started beating, I was mama to her – even if we didn’t know her outside my body. I was no less a mother. Then I have a beautiful princess – now residing in Heaven. For those new to my blog, my 7 year old little girl fight brain cancer for three years before taking her final breath this side of Heaven in February, 2016. She’s not here, and I miss her like crazy.

I am eternally grateful for the kids I’ve been blessed with. Those here on earth, and those whose home is Heaven. There is, however, a hole in my heart that is impossible to fill with anything else. Ever. I am going to let my heart have a voice today. Let my heart share a few things.

As shattered as my heart is, it still loves. It still beats – though it often feels like I need to remind it to beat again some days. But, even though there is a love so passionate, there is a counterpart called pain. My heart hurts. It aches.

Let me talk to you a bit about what Mother’s Day is to me. This day is as excruciating as it is beautiful. There is nothing that denies the incredible love. That cannot be erased. But to deny the existence of a broken heart is just unfair.

Mother’s Day does make me think fondly on the gift that motherhood is. I’m blessed to be given the honor of being trusted with the title of Mama. It also, however, reminds me of the empty space that those residing in Heaven used to fill. Though I love them greatly, I ache at merely the thought of the rest of this lifetime without them. I try not to dwell on it, but it’s impossible not to. Especially with all the memories and life moments that surround me each and every day.

Focusing on the little girl who we had seven years of a well lived life with, this is what I need you to know.

I need you to remember her. Not just that, but I need you tell me. I like to hear people reminisce about happy memories with her. No amount of you talking about her will bring me pain. I will not miss her any more than I already do. You talking about her won’t remind me that she’s gone – it will remind me that you remember her life – that she lived — not just that she died.

Tell me you miss her. That you hurt too. Tell me you’ll never forget her. If you never actually knew her, that’s okay. Remind me she was real, and so very loved. She was and always will be loved.

I need you to also just know that I hurt. Please don’t try to fix me. No amount of reminding me how grateful I should be because I still have the boys will ever change the fact that my heart is shattered. Yes, there is strength in those reminders – but they don’t stay pain. It isn’t possible for you to take away my pain.

What can you do?

You can offer to just sit with me in the pain. Acknowledge that it’s okay to not always be okay – and just know that I might not be feeling very okay any given moment. I might be – but might not be. Just sit with me. Allow me to just BE. Allow me the freedom to feel. To feel whatever I feel in that moment. Sometimes I feel love, hope, compassion and grace – while other times I feel quite the opposite.

I should note that sitting with me doesn’t just mean physically. It means online. Offline. Wherever.

Take the time to talk to me. Ask how I’m doing – but care enough really listen. If I tell you flippantly that “I’m good” that might be the truth, or it may be me begging you to dig deeper. I may mean it when I say I’m fine, or I may just find that easier than explaining how much I hurt and watching you squirm – not knowing how to handle me.

Another thing I need you to hear.

I know that you don’t know what to say. Truth be told, I’m glad you don’t know the pain associated with losing a child. I don’t expect you to have the perfect thing to say. Note – there isn’t magical or perfect thing anyone can say. And that’s okay. Sometimes the most powerful thing you can say is nothing. Just tell me you’re with me. Tell me you care. Just allow your presence to be a friend.

Oh, and I know I may step on toes here, and I promise that is not my intent. But you need to understand that no loss you know (a parent, grandparents, cats or dogs, birds or fish – even a child) will equate to mine. I don’t pretend that you don’t hurt – but it’s not the same. It can’t be. My pain is not worse than yours. It’s just different. To tell me that you know how I feel because your dog died simply doesn’t compute. Don’t get me wrong. I totally validate your pain and know it’s very real. I only stipulate it isn’t mine. It’s yours. You don’t get it, and I’m glad.

So, on this day, as all days – these are just a few things I want you to remember. But especially on Mother’s Day, remember that if I’m not full of joy – there are valid reasons and explanations. If I am okay, let’s celebrate that together cause it may not be that way long. But it may be. 

Just – you be you. I’ll be me. We can be broken together.

#RememberTheLove