Tag Archives: Jamie Tworkowski

Are You Aware? Let’s Talk About It!

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Many months, or many individual days come with awareness titles. Each day, or month respectively, seek to bring awareness to a cause. Something near and dear to someone’s heart. Well, this month – and specifically also this day is no different. Before I get to that, I would like to say something though. I almost wish I could go back to the brand of naivety where I simply didn’t know or understand these things. But, I can’t. And, my prayer is that, after reading this post, you won’t be able to either. I want you to be aware of these things, as nothing will change until we start to talk about them. No stigmas will be removed by remaining silent.

September is awareness month for multiple things. But, near and dear to my heart are two very intensely painful and “special” ones.

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First, September is childhood cancer awareness month. The month we bring awareness to something so rampant, and so widespread – but yet so many people think it is rare. Kids get cancer too. So many children, my daughter included, have fought and died as a result of this monster. So many children fighting this fight every single day. Cancer doesn’t discriminate. Cancer knows no race, ethnicity, gender, etc.  If you are interested in standing with us to raise awareness for all those who have, or who continue to battle this monster, we’d love it if you’d consider ordering a special t-shirt – created actually by my daughter and I while she was still alive, this side of Heaven.

Children need hope – especially those who have to fight for their lives in a battle with childhood cancer. What they need is awareness, funding, research, hope and a cure. It all starts with you being aware. No amount of awareness will bring my daughter back, but hopefully fundraising that provides research will provide the potential of new medications and therapies. My heart hurts, and it is my desire that no other parent know this kind of pain. The cold hard fact is this though – there have been no new childhood cancer protocols to save our babies lives in multiple decades. DECADES. the taxpayer-funded National Cancer Institute (NCI) plays a pivotal role in research, yet only approximately 4% percent of its annual budget is dedicated to childhood cancer. The result is that children are dying every day waiting for promising new treatments that lack funding. Our children deserve more than 4%.

There are multiple organizations (locally, and nationwide) where funds go directly to research and finding a cure. There are also several organizations that directly help the families with a child fighting cancer. If you need help finding a reputable place to make donations to, please ask – either here in comments, or via my contact me page. I’d be happy to help you find what makes sense for you – and will gladly share my own experience in those places who made a difference during our journey fighting childhood cancer alongside my daughter for the three years she fought.

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As we open our hearts, and fight for these little fighters all across the globe, we also need to open our hearts and fight for some other fighters. They don’t fight cancer – but, they fight other demons. You see, September is also suicide prevention and awareness month – with September 10th being Worldwide Suicide Prevention Day. This is a day where the entire world locks arms and stands together, fighting the stigma that surrounds mental illness and suicide. It is this day and month, that we are more vocal. Talking about it. Giving a voice to those who feel they have none. I have personally been affected by suicide as well. I have lost people I love as a result of their taking their own lives, and have struggled with my own inability to see anything other than the intensely painful moments that just hurt. I have had suicidal thoughts, and I know that I was made for more than just the pain.

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If I were to take (or have taken) my own life when I couldn’t see beyond the pain, I wouldn’t be here to ask you to please stay. I’m here today, asking you to stay. Please stay to be surprised. Please stay for love – to love, and to BE loved. Please stay to know others, but to also be known. Please stay and know that you are loved – that your life matters, and that your life is a story – with chapters, yet to be written. Please don’t take a beautiful story away from those who need to hear it. You are not alone. Not now, not ever. I join my friends at To Write Love On Her Arms (TWLOHA) in asking you to stay, and find what you were made for.

So, on this day – and throughout this entire month, will you join me in talking about the topics hard to discuss? Will you reach out to anyone you might see that is hurting? Know that any small act of love, of compassion, of kindness – it might just save a life. If you see someone in pain – for whatever reason, be present. Care enough to not greet their pain with silence. You may not have the right words to say, and it’s alright.

If you are reading this right now, and find yourself feeling hopeless, please know that you are not alone. You don’t have to do this journey alone. Please reach out for help. You are worth it. Your story is worth it. The world needs you to be here. If you need help finding resources, feel free to post here in comments or contact me directly via my “contact me” page. Also, you can find helpful resources on TWLOHA’s page.

If you are in immediate danger to yourself or another, please dial 911. It is NEVER too late. You can anonymously call the National Suicide Hotline at 1-800-873-8255. If your voice is shaky and you would rather text, you can send a text to the @crisistextline 747-747 and you will be connected with a person who cares about you. Where you are. How you got there, and want to help you see that hope is still real. Love is still the most powerful force on the planet. You can find a host of local resources from @TWLOHA.

I don’t have all the answers, and maybe that’s okay. I tell myself this often. I ask you to join me in raising awareness for these two causes this month. Let’s take it beyond just this month – and make it something we talk about regularly. It is only with open and honest communication that we even stand a chance at making a difference, and erasing the stigma(s) that keep us from talking about it – that same stigma that takes lives, and keeps people from seeking help. Let’s be the change our world needs. Let’s talk about it. Let’s do something. Let’s let love lead the way. Always, Remember The Love.

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Love Like Tomorrow Isn’t Promised 

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Love. 

I will quote one of the most inspiring people on earth, Jamie Tworkowski; founder of To Write Love On Her Arms. I’m grateful for Jamie’s heart, and for the worldwide Army of people loving people exactly where there at, that he has created and continues to help grow.  He recently shared these words (and clothing with this coined phrase) :

Love is still the most powerful force on the planet. 

I talk about love often. We all should. Why, you might ask? It’s simple. 

Love is the backbone of strength. 

Every human being needs and deserves to be loved. We all do. But, taking that a step further, we also need TO love. 

My daughter, unbeknownst to her, created #RememberTheLove. (Feel free to search Facebook with that hashtag) This is something that she lived and breathed. It’s something I strive to do more of every single day. Yes, in her honor and memory, but also to make an impact and love people well. 

Think about it. 

If we loved people in the same way we’re loved, or how we *should* be loved – we would strengthen ourselves, our relationships, families, communities, our Nation, and yes- the world. Dramatic? Sure. But it’s truth. Love (kinda right up there in connection with hugs) makes the world go round. 

My daughter was dying, and she knew she was going to die. She didn’t want everyone to be sad  (even though she knew they would be) when she went to Heaven – but, instead, she asked that we would #RememberTheLove. She GOT it. She understood.  Friends, at 7 years old, this sweet little girl knew more about love than many know in a lifetime. 

That is where strength comes in – at least for me. When the moments come, and they come often, that I am overwhelmed, and maybe feeling kinda hopeless – it is love that sustains me. It is grounding, and produces strength.  Love is this powerful force that gives strength unlike anything else possibly could.

So, yes, you’ll find that I talk a great deal about love. It’s because love is life changing, life giving, and even life saving. Will you join me in this journey of loving people well? Oh, and I should add – loving people well also includes YOU. Self care is vital. As you show yourself love, it’ll be easier to reach out with and in love. 

To all who read my words, who love my daughter and our family – thank you more than words can ever express (though, clearly it won’t be for lack of trying) for being strength for us every single day. I need you. Our family does. And, we are grateful for the continued love, thoughts and prayers, and support – in whatever form it takes. Love and hugs, all the way around. 

Community Challenge – In Three Sentences Or Less

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Challenge time

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It’s about community – it’s importance, and how it makes a difference.

Here’s your challenge. Think of a person you respect. Tell them in three sentences or less things you love about them, and remind them of things they may struggle to remember on their own.

I welcome you to post your answers here in the comments – or feel free to connect via my contact me page and I’ll update this post with all of our community of answers. Comment or message me with as many people as you’d like. This is all about love.

The first person who came to mind is To Write Love On Her Arms (TWLOHA) founder, Jamie Tworkowski. Here are the things I wish he knew and could always hang onto:

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Jamie is a kind hearted person who encourages, shares hope and compassion, and loves people well. He is tremendously loved as a son, brother, uncle, friend, comrade, and one day a lifelong companion. He lives life authentically, but with vulnerability as he tells his own story of brokenness and triumph, pain mixed with hope, and sees value in all people – all the while reminding everyone that it’s okay to not be okay, to be honest, and that everyone has a story worth telling, and one that is full of love and hope, while also remembering that rescue is possible.

(See what I did there? I made about six sentences into three – all with the magic of breaking all sorts of grammar rules – so I beg you now — don’t think it necessary to remind me of this.)

I may share and highlight others as well – but wanted to give everyone a chance to #RememberTheLove.