Tag Archives: you matter

Are You Aware? Let’s Talk About It!

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Many months, or many individual days come with awareness titles. Each day, or month respectively, seek to bring awareness to a cause. Something near and dear to someone’s heart. Well, this month – and specifically also this day is no different. Before I get to that, I would like to say something though. I almost wish I could go back to the brand of naivety where I simply didn’t know or understand these things. But, I can’t. And, my prayer is that, after reading this post, you won’t be able to either. I want you to be aware of these things, as nothing will change until we start to talk about them. No stigmas will be removed by remaining silent.

September is awareness month for multiple things. But, near and dear to my heart are two very intensely painful and “special” ones.

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First, September is childhood cancer awareness month. The month we bring awareness to something so rampant, and so widespread – but yet so many people think it is rare. Kids get cancer too. So many children, my daughter included, have fought and died as a result of this monster. So many children fighting this fight every single day. Cancer doesn’t discriminate. Cancer knows no race, ethnicity, gender, etc.  If you are interested in standing with us to raise awareness for all those who have, or who continue to battle this monster, we’d love it if you’d consider ordering a special t-shirt – created actually by my daughter and I while she was still alive, this side of Heaven.

Children need hope – especially those who have to fight for their lives in a battle with childhood cancer. What they need is awareness, funding, research, hope and a cure. It all starts with you being aware. No amount of awareness will bring my daughter back, but hopefully fundraising that provides research will provide the potential of new medications and therapies. My heart hurts, and it is my desire that no other parent know this kind of pain. The cold hard fact is this though – there have been no new childhood cancer protocols to save our babies lives in multiple decades. DECADES. the taxpayer-funded National Cancer Institute (NCI) plays a pivotal role in research, yet only approximately 4% percent of its annual budget is dedicated to childhood cancer. The result is that children are dying every day waiting for promising new treatments that lack funding. Our children deserve more than 4%.

There are multiple organizations (locally, and nationwide) where funds go directly to research and finding a cure. There are also several organizations that directly help the families with a child fighting cancer. If you need help finding a reputable place to make donations to, please ask – either here in comments, or via my contact me page. I’d be happy to help you find what makes sense for you – and will gladly share my own experience in those places who made a difference during our journey fighting childhood cancer alongside my daughter for the three years she fought.

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As we open our hearts, and fight for these little fighters all across the globe, we also need to open our hearts and fight for some other fighters. They don’t fight cancer – but, they fight other demons. You see, September is also suicide prevention and awareness month – with September 10th being Worldwide Suicide Prevention Day. This is a day where the entire world locks arms and stands together, fighting the stigma that surrounds mental illness and suicide. It is this day and month, that we are more vocal. Talking about it. Giving a voice to those who feel they have none. I have personally been affected by suicide as well. I have lost people I love as a result of their taking their own lives, and have struggled with my own inability to see anything other than the intensely painful moments that just hurt. I have had suicidal thoughts, and I know that I was made for more than just the pain.

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If I were to take (or have taken) my own life when I couldn’t see beyond the pain, I wouldn’t be here to ask you to please stay. I’m here today, asking you to stay. Please stay to be surprised. Please stay for love – to love, and to BE loved. Please stay to know others, but to also be known. Please stay and know that you are loved – that your life matters, and that your life is a story – with chapters, yet to be written. Please don’t take a beautiful story away from those who need to hear it. You are not alone. Not now, not ever. I join my friends at To Write Love On Her Arms (TWLOHA) in asking you to stay, and find what you were made for.

So, on this day – and throughout this entire month, will you join me in talking about the topics hard to discuss? Will you reach out to anyone you might see that is hurting? Know that any small act of love, of compassion, of kindness – it might just save a life. If you see someone in pain – for whatever reason, be present. Care enough to not greet their pain with silence. You may not have the right words to say, and it’s alright.

If you are reading this right now, and find yourself feeling hopeless, please know that you are not alone. You don’t have to do this journey alone. Please reach out for help. You are worth it. Your story is worth it. The world needs you to be here. If you need help finding resources, feel free to post here in comments or contact me directly via my “contact me” page. Also, you can find helpful resources on TWLOHA’s page.

If you are in immediate danger to yourself or another, please dial 911. It is NEVER too late. You can anonymously call the National Suicide Hotline at 1-800-873-8255. If your voice is shaky and you would rather text, you can send a text to the @crisistextline 747-747 and you will be connected with a person who cares about you. Where you are. How you got there, and want to help you see that hope is still real. Love is still the most powerful force on the planet. You can find a host of local resources from @TWLOHA.

I don’t have all the answers, and maybe that’s okay. I tell myself this often. I ask you to join me in raising awareness for these two causes this month. Let’s take it beyond just this month – and make it something we talk about regularly. It is only with open and honest communication that we even stand a chance at making a difference, and erasing the stigma(s) that keep us from talking about it – that same stigma that takes lives, and keeps people from seeking help. Let’s be the change our world needs. Let’s talk about it. Let’s do something. Let’s let love lead the way. Always, Remember The Love.

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Facing Life After Death – Walking Through Life’s Unbearable Moments

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This child. This courageous fighter embodied strength combined with love. She knew and showed compassion. Though she faced insurmountable odds, she gave the world so many gifts – love, hope, compassion, joy, and so many other beautiful things. She leaves a beautiful legacy of love.

Last night, I had the opportunity to spend time on the oncology floor at our Children’s hospital. If you know my story at all, you know that my daughter died (13 months ago today) from brain cancer. She spent a great deal of time on this very same oncology floor. So, to be admitted with her older brother – it was difficult. When I introduce this paragraph as this being an opportunity, I did so intentionally. I had the chance to feel things that needed feeling.

With regards to being on that floor again – it was quite a mixture of emotions. Each and every emotion you could have, I did. I was angry. I was happy. I was sad. I had joy. I knew deep pain. I knew incredible love. It hurt so much. But, there was so much beauty. I was able to see the love in those walls. Empathy and compassion on the faces of nurses who remember Janet, and who remember the love. I was stopped once, and asked if I was Janet’s mom. That was such a heartbreaking and more than that – heartwarming moment. She was there the night before Janet died, and she remembers. She’ll never forget my baby. I saw another nurse this morning that also knew Janet well. No magical words, but compassionate eyes. We did talk, and it did my heart good. They still care. They’ll never forget her either. My heart needed to feel the pain, but to also feel the love.
 
I kinda think each and every day, all of life, is this way as well. Think about it. As I have said so many times before – I KNOW that I feel the deep pain that I do because of deeply rooted love. If you look at ANY passion or emotion, look at the polar opposite emotion. Usually, you can find them attached at the hip. Weakness is attached to strength. Hope to hopeless. Broken to healing. Etc., etc., etc…
 
I want to encourage you guys with some encouragement that has been life – giving to me. As we all know I stand on the FACT that it is okay to not always be okay. More than that, it’s okay (make that vital) to feel what we need to feel. If we hurt, allow ourselves to feel. There’s that fine line, though, of not staying in that place forever.
 
If you need to know that you are not alone, allow me to be the voice that says, “me too.” No matter what you are walking through, know that you are walking THROUGH it. I know that you may be struggling with the most horrific pain you have ever experienced. Is it the same as my pain? No, not always? But, also, yes – perhaps. Either way, pain (like love) is a universal language. It speaks. Will you listen?? I will. Maybe you don’t need words. Maybe you just need someone to be willing to sit, even virtually, with you in your pain. That is a gift that has been offered to me, and it’s an outstretched arm I also offer.
 
I would also like to offer this tidbit. As a bereaved mother, I want you to know – any of you reading this, it is an honor to walk alongside you on your journey as well. Do I enjoy pain? No. But, there is great healing (for me) in doing life alongside other people. It gives me great purpose to be able to say, “I may not get exactly what you are going through, but it’s an honor to sit with you in this pain,” and mean it. I still consider it a distinct honor to walk alongside parents with children fighting cancer – at the beginning of their journey, or even in their final moments. Does it hurt? Absolutely. Is it hard? Without a doubt. Is it worth it? Absolutely, positively, without a doubt. I said all that to say this, PLEASE connect and reach out. Though I have walked through some very painful seasons, it gives me tremendous purpose to use our experience(s) to share hope, compassion and love with others.
 
So, in the event you ever need help, know that help exists. You aren’t alone, and you matter. You are valued and loved. Please give yourself the ability to feel what you need to feel, to be honest and to give your heart a voice. It is then, and only then, that healing can begin.
 
If you would like to talk to me, I am here. Reach out. If you have a friend who has a friend fighting cancer, don’t hesitate to reach out. We have a wealth of knowledge, and though it sucks, it’s an honor to share experience(s) with those walking through similar life experiences. If you’re just hurting, and your heart needs a voice, I’m here. A non-judgmental, listening ear.
 
To all who continue to surround our family with your thoughts and prayers – know that we are, and forever will be grateful. The love and encouragement you continue to share – there is so much strength found there. Thank you for, forever and always, for you reaching out and being able to #RememberTheLove. It brings me strength, and does my heart good.