Tag Archives: love

Sep12

With Childlike Faith – Fighting Childhood Cancer

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My daughter has such heart. She has a joy and just the positive spirit that she takes with her everywhere! This little girl has a smile that will light up any room. Her no-nonsense and innocent look at life is heartwarming beyond words. Children, especially those fighting big battles, just have a different perspective than anyone else alive does.

With all this said, I’d like to fill you in on some of the details of our recent history.

As you may have heard by now, our little Janet’s cancer is back, and things don’t look good in a lot of areas. First, I am going to share all that with you – then I am going to tell you were we stand on everything about to be mentioned.

We all knew that it was a possibility that her cancer could one day come back. No one, and I mean no one thought it would so soon. Dealing with a recurrent / metastatic cancer is not good. Learning that she will endure cranio spinal radiation for over a month (every weekday) is also not fun. The follow on treatment will be an outpatient chemo therapy regimen.

Let me explain her treatment plan. For four and a half weeks, Janet will undergo radiation therapy. This time, there will be mostly proton beam radiation, with “normal” radiation a few times. There are said to be normally more side effects with this because a different type of radiation, as well as a larger part of her being treated. The goal of hre radiation is to shrink and make disappear the tumors… also to preferably kill their opportunity to every even possibly return.

After radiation, the protocol is that she will go through an outpatient chemo therapy regimen. This will include daily (Monday through Friday) outpatient chemo. One week. Then, she’ll have approximately 2-3 weeks off, and then do the same thing again. Aside from that, every two weeks, she’ll have a one hour outpatient chemo administered – separate from the others. As I have learned, this chemo therapy regimen is more aimed as being palliative support, or a quality of life kind of thing – as versus curative.

If you’re like 99.99% of everyone else reading this, you may be wondering about alternative protocols or treatment options. You may have suggestions on where else we can seek treatment on behalf of our little Janet. I want you to know, we have gotten multiple second opinions – from the nations leading hospitals and have involved the nation (I’d say even the world’s) top medical minds in this situation, and in her care – simply because her tumor / cancer IS one of a kind. Nothing like it exists in the world. I spoke with another hospital again today, and heard the exact same news as all others have said – St. Louis Children’s Hospital has her with a protocol they’re comfortable with, would recommend themselves, and has state of the art equipment. There are other alternative therapies that we are also looking into, just to ensure we do all that we can to help our little princess do her best.

The entire point I am making is that we have faith and confidence in Janet’s medical team here at Children’s. Never did we doubt them. We sought second opinions just to ensure everyone was on the same page. We do NOT like the page everyone is on, but there is a certain amount of peace knowing that the medical minds agree – as to both what we’re looking at, as well as treatment options, etc.

Now, with all that said, I want you to know that we have not given up – and we will not EVER give up. In fact, we KNOW without even the shadow of a doubt that our God is greater than ANY cancer, any tumor, or any issue Janet faces. Regardless of what the situation looks like, we KNOW that God IS in control. His hands are clearly seen in just about every aspect of this journey. That’s not to say that Him being in control makes it any easier to deal with — but it does make it easier to walk through. We don’t LIKE the situation Janet is in right now, but we do trust God 100% with her situation, and her very life. All of our lives. Her life, and her battle with cancer is part of a bigger story – one bigger than her, than us, or than anyone can imagine. I have that faith. What exactly that means, I do not know. However, I do know that I am grateful to have the strength that comes from the living God we trust. I do not know what tomorrow will bring, but I refuse to allow the fear (like I’ve said before) to rob and steal the joy from today.

For those of you inclined to pray, know that your thoughts and prayers are valued.

Aug20

What It Looks Like To Lose Your Identity – From Bipolar To Cancer Mom To…

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As this title might elude to, I’m about to share a little bit about what it looks like inside my head. Buckle up. This is going to be a fun ride.

My blog has not been active in some time. I’m not going to make some promises to post a certain amount a week or month, or anything really. I am going to write from my heart. It may be multiple times a day, and it may be only once in a blue moon. What I can tell you is that I have been struggling – not for words, but to figure out who I am. Let me explain.

As you know, or may not know, my five year old daughter has been fighting cancer. She had a brain tumor removed from her head. She had daily radiation for six weeks, and she then had a high dose chemo therapy regimen. To make a long story short, they threw all they had at it, with the hopes that something was the right answer. You see, the cancer she had growing was literally thought to be one of a kind. Her tumor and info was sent all over the place, in search of second, third or tenth opinions. We’re talking worldwide experts. No name for this unique thing. As such, we held our breath, and above all else, prayed. This past January, she completed treatment! Thank God! In February, her scans showed no evidence of the disease. It showed the cancer didn’t appear to have even ever been there! Again, thanking God!! Then, in May, her scans showed spots on her spine. Those spots were consistent with drop metastasis. In other words, it looked like a cancer that had metastasized and spread to her spine. But, there was a silver lining – it also might NOT be that. It could just be enlarged blood vessel(s) and we had no way of knowing for sure at that point. Even if it WAS cancer, it would have been too small to do anything with, or biopsy, etc. So, we wait. Three months, and we wait. Tomorrow, actually, she will have more scans to look and see what we are dealing with – which, obviously, we hope is nothing. In fact, our prayer is to have the scans, and see NONE of the spots previously seen.

That was the back and lead up explanation to what I am about to share with you. I can pretty much say that I am a picture perfect example of what it looks like to lose your identity.

One more back story. Many of you know, and some of you don’t. However, instead of hiding behind a mask of “everything is okay all the time” I want to be transparent about something. I was diagnosed with bipolar disorder. Okay, fine. Go look it up. No, wait…it’s best you don’t. That said, it’s something – just the diagnosis – that I struggled with for a very long time. Years. Until recent history that I really figured out that it was just a diagnosis. It was not me. It is part of who I am, but not my identity. At least I thought. I do struggle with depression. I have also learned that I’m not alone in that. Depression is a real thing. It affects more people than you’d realize, or even care to think about. It hurts. Again, it became my identity for some time.

So, through these two examples alone, you can see that my life is definitely not boring. There are times, I long for a much more boring time.

The issue and problem is that we often will allow life’s circumstances – those curveballs that life tosses our direction – we often allow those things to define us. They become who we are. They become our identity. Then, when life changes, or circumstances take on a different shape, we tend to lose a part of ourselves. At least, it’s clear that I do. Let me explain.

When my daughter was diagnosed with cancer, I became a cancer mom. I became a cancer awareness fighter. I became a voice for children who battle childhood cancer. I became a person who spent more time in the hospital, even during holidays, than at home – at least it seemed at times. I realized that we had almost a second home away from home. Childhood cancer. It was who we became, and the fight we fought. We lived and breathed it (through all the tests, scans, hospital stays) with every breath. Then, THANK GOD, my daughter had clean scans. No evidence of the disease. No more daily / weekly / monthly tests, scans, radiation, chemo, etc. No more hospital stays. No more cancer, right now. Of course, I was elated. Beyond all measure. My daughter was free to live, breathe and run around and just well, be a kid! Yes, she would struggle with the aftermath of having had radiation and chemo, but she was HERE. She is alive!

But, now what!? Now where do I go? Now, who am I? These are all questions I never actually ASKED, but realized were present – asking themselves. I have come to realize that my identity was set in those things. It, rightfully so, consumed my days. Now, though – now that she is not fighting this disease, what’s a girl to do? I have to embrace this “new normal” as life again. I have to figure out what our current “normal” is and go from there. I won’t lie. It’s not easy. It is, however necessary.

I have, just in the past couple of days, sat down. With myself, and with my thoughts. I dug deep, and thought clearly – back to a time where I felt okay, good even. What I came to realize wasn’t shocking, but it was good to remember. I was the happiest when I was reaching out to others. When I took my own time, and gave it to others. When I took time, became a volunteer, and just reached out to others – helping THEM smile, it helped me. My hurting heart was calm again. It would bring me joy to see joy in someone else’s face. To know I had made a difference – that made a difference in ME.

So, two days ago, I went back to one place where I have felt me. I went to the YMCA. We have long since (over a year) not had a membership. Recently, my husband lost his job, and so a YMCA membership was something we couldn’t fathom, let alone afford. Still, though, I had to connect. I asked if I could volunteer again. I asked if I could just reach out, even during times that I might be hurting, because people (myself included) need people. I mentioned that I know God created us as community people, and I need that too. So, I turned in a volunteer application packet, and will soon be able to volunteer. I guess, to some, it may seem odd to be so excited about the ability to donate my time to make a difference in this community, and in other people’s lives. But, it isn’t at all silly. It’s real. I firmly believe that the heart of a hurting person can be brought so much joy from reaching out and serving others in such a way that life becomes about someone other than themselves.

I’ve learned that I may not have a rock solid identity, but I do know that there are things that make a difference. My purpose, through it all, however, remains. My purpose is to share smiles, and to share hope. It is to realize that in my not being alone, NO ONE in the world needs to feel alone. People – every person alive or dead – is or has a story. Every person alive is a living breathing story. Their story matters. Their life matters. THEY matter. That, and their story isn’t finished being written yet! The current chapter is JUST ONE chapter in a much larger – yet to be completed – book.

If you made it this far in reading this blog post, know that you have my gratitude. If you are hurting and not sure what your purpose in life is or where to find your identity, hold on. You’re still there. You’re still you. Don’t give up. YOUR life matters. Your hopes and dreams matter. Your story isn’t finished. Don’t give up! If you are hurting, or just want to chat, please don’t hesitate to seek help. Know, also, that I’m happy to talk it out if you’d like to post below or send me a message via my “contact me” page. I am grateful to not do life alone, and would be honored to walk alongside you in your journey as well!

May8

Learning To Love The Lemonade

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Have you heard the age-old saying “When life gives you lemons, make lemonade” or have you been fortunate enough to not hear that comment at every turn – especially when life isn’t so awesome!? Don’t get me wrong. I believe this statement is a good thing to remember – to look at the bright side, and not always dwell on the “lemons” that life hurls towards you.

I’d like to share somewhat of a life update, and give you a very practical update on how you can enjoy the tasty lemonade, even in the middle of sour lemons!

For those unaware of our family situation, my daughter has battled a rare and aggressive brain cancer. She had a brain tumor that was surgically removed, and then followed through with six weeks of daily radiation. After the completion of radiation, she underwent a high dose chemo therapy regimen. We’re ecstatic to say that our five year old daughter has completed treatment. At the end of treatment, her MRI/scans showed no evidence of the disease. She was deemed “cancer free” and we celebrate! We have scans coming up in two weeks to verify that she remains cancer free, and no recurrence.

Watching my child fight cancer has been the single most difficult thing I have ever walked through. As such, I have also learned to CHOOSE to see the good in things…to see a bright side in a dark room. So, let me share a little story with you.

As a “cancer kid,” my daughter was connected with Make A Wish. She was given the opportunity to make a wish. She could dream big. Her wish, like so many other little kiddos, was to go to Disney World, and to get the opportunity to meet the “real” princesses. We actually just went out of town last week for Janet’s wish trip. We did not post openly, or share online until our return. We were not trying to hide anything, but rather security conscious. We opted to not share openly so our house wasn’t a target for those who would seek to do harm. We are back now, and updates – we have plenty! This post, in fact, will be a summary of how things, even amazing things like a wish trip, can sometimes not go as planned — and how you can make a conscious decisions to make the lemonade instead of sulking and drowning in the sorrows of what could have been.

I would like to take you back to the day we left. That day started off magically. Our family was picked up and escorted to the airport in a limo! The awe of it all was precious to watch. The amazement in the children’s eyes was priceless. As we were whisked away, we just enjoyed the moment. We were all together as a family, and were at the beginning of what was pegged to be a magical vacation. As we got to the airport, but before boarding the plane, we noticed a small rash on one of our son’s wrists. Nothing big, but we kept an eye on it. We thought perhaps there was a couple of bug bites. That’s all it looked like. By the time we arrived in Orlando, it had spread a bit. As we checked into our magical village, Give Kids The World, we noticed it had continued to spread. The only troubling factor was that it spread all over his entire body, the palms of his hands and soles of his feet included. That evening, we contacted his pediatrician, and were urged to go to the local emergency room. So, we went to Arnold Palmer hospital for Children. Thankfully, we met some amazing and kind people. But, true to form as it seems to go with our family and medical “issues” – they were a little bit baffled by what was going on. His lymph nodes were a bit swollen, but that was chalked up to a recent strep throat infection. He’d been on antibiotics, and initially they thought a possible medication reaction, but that seemed to be also incorrect. They made mention of leukemia and also Rocky Mountain spotted fever, but said both were extremely unlikely, as there wasn’t other tell tale symptoms accompanying his rash. They also said it would be pointless to test at that point, as he’d so recently had the strep infection. We had four different doctors, and three separate nurses come by to check him out. They were baffled, but weren’t overly concerned. That said, there wasn’t much they could do, but did give us benedryl and send us on our merry way. We were told not to go out in a whole lot of public places for at least the next day or so, and until his rash started getting better not worse. So, that is what we did. We kept him home while his sister and brother went out and about and did a few things. We had some good time to bond, and just rest and relax together. While that started our trip, that would not bring us down.

The weather. We anticipated Florida being hot and sunny. We definitely got the first half of that equation. From the moment we got off the plane, we noted how muggy and hot it was. We also surmised it would likely rain or storm soon. What we didn’t know was just how much of our trip would be covered by this kind of weather! That first evening, we had a severe thunderstorm warning, along with a flood warning. We remained safe, but that was not the most fun time ever. When there was a break, I took the munchkin (Janet’s brother) to the hospital. That next morning, she and her brother went with their daddy to have some fun. There was a playground that is a life sized Candy Land play area. They were very excited to go there, but unfortunately it was closed due to inclement weather – previous, and evidently what was to come. So, they had a variety of other mostly indoor fun.

The next day was pretty much a repeat of that first day, weather wise. There were severe storms, and lots of lightening/thunder. At this point though, we were determined to not allow the weather to get the best of us. Jeremy’s rash was looking better as well, and so we made the trip to the Disney parks. We went to Epcot to start our adventure. Unfortunately, a decent amount was closed due to the weather. This, however, would not stop us from having fun and making those special memories. We had a blast, and got to experience some pretty cool Disney magic. Again, the weather prevented some of the attractions from working. A show or two were cancelled because they were solar powered, and there just was too much cloud cover to allow for enough energy and such. No worries, we’d still keep on keeping on! That evening, we made the decision to stay until the park closed, and watch the light / fireworks show. That was spectacular. Thankfully, the weather held off long enough to really enjoy that, and to get back to the vehicle. The light show mixed with the beautiful fireworks were awesome – and just the perfect mixture of fun to put a kid TO SLEEP!! Janet was out like a light – for the majority of the show. She was exhausted. Her little body isn’t used to so much activity. She was okay, just tired. We did take lots and lots of pictures, and video recorded the entire thing. We will watch it with her later. She seemed just fine with that idea!

The next day, and for the three days that would follow, we had more storms and rain. Lots and lots of rain. In fact, the first day we saw the sun peeking out of the clouds was the day before our departure. Not to worry. We learned to sing and dance in the rain – literally and figuratively. We went to Downtown Disney. Janet went to the Bibbidy Bobbidy Boutique, where she had her makeup and nails done, and was transformed into a little princess. Her princess makeover also included having her hair done. Well, she was concerned because she has virtually no hair. That was not a worry, however. The fairy helpers were so kind and had the perfect wig to complete her beautiful new look. She got to be princess Aurora as Sleeping Beauty. To watch her excitement through the process brought (happy) tears to my eyes. She knows without even the shadow of a doubt that she is beautiful, inside and out — and that hair isn’t the make or break point in being beautiful. She did, however, quite enjoy the wig and new look. She enjoyed the glamour and excitement of being a princess. She got to wear her wig, new dress and wand around for all to see. She even perfected the princess wave. That lasted for approximately ten minutes – until the wig was scratchy, and she wanted it off. No worries. She was beautiful beyond words, and was having fun. From there, we got to go run through the rain for a Disney princess photo shoot! We could have complained because of the crazy amount of rain, but we opted to have a good time, despite the stormy weather. She had her pictures taken without the wig, and was so happy to do so! After all, it captured HER right now…at this moment…with the fuzzy new hair she’s currently sporting.

From there, we went to a glamorous lunch. Well, that was the theory at least. In reality, it was overpriced, overcooked and not worth it. However, it was Disney, and we weren’t going to let over-priced less than exciting food ruin the rainy day. Instead, we let the kids get special drinks (Italian sodas for one, chocolate milk for one, and cranberry juice for the princess) and just enjoyed each other’s company.

The next day, we went to Universal Studios. We figured that would be a great place when the weather was still supposed to be rainy. We were told most of the attractions were either inside or under cover. And they were. It was the distance BETWEEN them that made us realize that it may or may not have been the best option. It was fine, however. We got to go on several rides and saw several attractions. There will be lots of pictures and videos to come. There were only a few rides that we took that Janet could not ride, due to being little. With this said, it was likely for the best because she’s too young to enjoy or not be scared by some of them anyway. We were able to just relax and spend time together as a family.

The following day was spent at Disney’s Magic Kingdom. One thing that I was determined we’d share as a family was “It’s a Small World” ride/attraction. I did that with my family when I was very little, and I wanted to share this magical experience with my own family. So, that was actually the first thing we decided to do at Magic Kingdom. We boarded the boat, and had a thrilling and relaxing little adventure. Janet lit up, and was in awe of every part of the ride. Her brothers even had a great time! When she was looking one direction, and her brothers thought she was in danger of missing something – they’d make sure she turned to look. We have lots of pictures, and also video from that experience as well. From there, we went to the big carousel. She and her brothers all wanted to ride a horsey. On our way to the entrance, we ran into a princess. She met Janet, and learned that we were there for her Make A Wish trip, and she took us just across the patio area to a very special spot – with the Magic Kingdom castle as a backdrop. That was neat. She had an onlooker use my phone to capture the picture, so I could be IN the picture WITH the kiddos. That was so neat. We then rode the merry go round. From there, we went to the Princess autograph and picture taking adventure. Janet got to meet the princess from Frozen, as well as Aurora. It was very neat for her, and for all of us. Pictures, of course, are coming! We went on lots of rides that day, and spent much quality time together. The kids all really enjoyed both Thunder Mountain and then Splash Mountain. After that, and to conclude our fun for the day, we took the train back to Main Street, so as to experience seeing the park from the train as a vantage point. That was also a neat experience.

Walking. Together, we did lots of walking. (We did have a stroller to use for Janet, and she was allowed to have her stroller function as a wheelchair when needed because she lacked enough energy to do a full day of fun, much less walking.) That came in quite handy, truth be told. There were times she wanted to be strolled, and there were times she wanted to be held/carried. There were not that many times that she actually wanted to walk. That was okay though…we took turns holding her, or letting her ride. Through it all, we were grateful to be there, and for the opportunity that had been afforded to our family.

Our final day, we had a flight late in the day, so decided to make one more adventuresome day. We went to Sea World. Though we didn’t have a full day, we got to see dolphins and flamingos. In all honesty, we weren’t able to go on a lot of rides, as Janet was too small for much of it, and we didn’t want to be drenched. So, we just enjoyed the surrounding area of the park, relaxed at an underground cove, and watched dolphins from below ground. That was a really cool experience.

Sadly, it was time to head to our departure. I wish I could tell you that it was an exciting time. The airlines welcomed us as a Make A Wish family, and that was neat. We had help when needed, and finally got to our gate for departure. As soon as we took our bathroom break, and got to our gate, it was time to board. We boarded and got comfortable. One disappointing thing we discovered when we landed was that one of our carry on bags had been misplaced, and likely left at the departure gate in Orlando. So, that was lovely. It was an important carry on, and included the kids and my medications. Thankfully, we have extras, and have filed the report to hopefully be reunited with our missing bag soon. We’re hoping this is a quick process. There were meds, kids toys, and some spare clothing in that mix. After baggage claim, a nice man greeted us, and took us off to the limo. We completed our Make A Wish trip with a limo ride home. It was beautiful, neat, and overall – amazing. We weren’t happy the magical trip had concluded, but were extremely happy to see our home.

That was until we walked inside. It was fine…or at least seemed that way. As we flushed the toilet, and attempted to refill my water bottle. It was at this moment that we discovered that the water had been cut off in our absence. We had made the payment online, and instead of that working, it evidently hadn’t gone through after all. So, yeah – that was a lovely welcome home surprise. Again, it was another opportunity to sip on the freshly squeezed lemonade. First thing this morning, we contacted the water company, and needed to go in person to make the payment. They assured us it would be turned on quickly, and apologized for the welcome home the way that it was! It wasn’t a bad transaction, and connecting with them wasn’t a hard process. It was annoying to have to go through, but hey – now we have water again. As we were trying to get them paid, we noted that the card we were using was denied. It turns out that having fraud protection is a great thing. Since there was questionable activity (we traveled outside our home and adjoining states) our accounts were temporarily frozen. I do say it was good to have this, because we realized that if our stuff had actually been stolen, having that protection in place is priceless. Just not when trying to get life back to normal, and payments processed! Not to worry, we did get that all taken care of. Now we have water again!

What was truly beautiful was watching our kids have fun – together – without the worry or concern of radiation, chemo or a hospital stay. Just watching my little girl, and her brothers be KIDS…kids being kids….that was and is priceless. So, while life gave us lemons, we enjoyed the lemonade.

I’d like to personally say thank you for the continued thoughts and prayers surrounding Janet, this trip, and our entire family. We are sincerely grateful for each and every person who connects with this blog and also Janet’s Facebook page. (Found at http://www.facebook.com/prayingforlittlejanet)

Feb20

Unmerited Grace, Unwarranted Forgiveness, and Undeserved Love

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Grace. Forgiveness. Love.

These are three words that people throw around time and time again. I do, and you may too. The question is – do you believe that they are for everyone? Think about those people who are hard to extend grace to, who just don’t deserve forgiveness, and those who are really hard to love. Do you have a mental picture of someone in your head right now? I know I came up with several examples.

As an example, I will bring up a recent news event. A little ten year old girl was abducted. An amber alert was issued, and hope for her safe return was sent around the nation. We all went to bed that evening, many people nationwide praying for her to be returned home safely. The next morning, however, the news reports were heartbreaking. A man had been found, arrested and charged with her murder. Murder. Seems she wouldn’t be returning home safely after all. I know my heart broke with many, many people about this. My initial response was WHAT THE <insert expletive of your choice here> IS WRONG WITH PEOPLE???? Then, as the news story further unfolded, it was noted that this precious child had been abducted, molested, and then murdered. Harder to think about, this was all allegedly purported by someone many children trust every day – a teacher. This made me angry…and it should. This broke my heart…for what the little girl endured, but also for her family, and for those who loved her, and now will miss her.

Now that I have painted this hard to think about picture, I’d like to offer another scenario that will likely make your stomach turn. It may even make you angry. But, what I’d like, more than anything else, is for it to open a dialog. I’d like to hope you will at least think about it.

Let’s take this man. A man many people have called all sorts of names – many I will not repeat, cause they are not appropriate for general audience. That said, people have also been quick to explain what they’d like to do to this man. What punishment they’d give him, if it was their ability to do so. I bet you could imagine what your punishment for his crimes would be. Torture? Execution? Whatever method chosen, it would likely be very unpleasant, and likely painful.

So, about my scenario regarding the man charged with kidnapping, molestation and murder — Does he deserve grace? What about forgiveness? Surely not love!? Couldn’t be – he doesn’t DESERVE any of those things!! I would like to challenge this line of thinking!! No, he absolutely does NOT deserve grace, forgiveness OR love. The truth is, though, NONE of us do! God hates sin. ALL sin.

*******Prior to my continuing, I would like to insert this little caveat. While I am about to explain my thoughts about grace, forgiveness and love – as it relates to a criminal of his nature, I want to make it known how I also feel. I believe 100% that this man, provided he is found guilty of the aforementioned charges, should be held accountable. I think he should be punished, and every amount of the legal ramifications he is due, SHOULD be afforded him!!*******

Now I’d like to explain my thought process behind what I mentioned earlier. This man needs grace. He needs forgiveness, and he also needs love. As Christians, we are called to love as Jesus loved. What does this REALLY mean though? God’s grace is not earned, and you can never actually earn it. The same rings true about forgiveness. God forgives. Period. At this point, you may be thinking I am off my rocker! That may be, but not for these reasons. You see, every human being alive needs grace, forgiveness and love. Period. EVERY PERSON.

Does this mean we have to love (or even like) what he did? ABSOLUTELY NOT! But, if we are truly going to love as Jesus loved, we are going to dig deep, ask God for help if need be, and offer him love. This doesn’t mean we’d ever want to even look at him. It doesn’t mean you’d run up and give him a bear hug. It doesn’t mean you would ever invite him over for Christmas dinner. What it does mean, is that you’d want to see his heart softened, him come to know Jesus, him turn from his criminal ways, and ultimately end up in Heaven one day. Does he DESERVE it? No! But, I’m back to the same sentiment that NONE OF US DO! Should his crimes be forgiven? Not in the eyes of the law, and not as it relates to justice being served legally. What it DOES mean is that God gave his only son to die on the cross to forgive EVERYONE of their sins. This man’s horrible, despicable choices are no different. Jesus has already paid the price. As I mentioned previously, I absolutely believe he should be held accountable for the choices he made, and for the crimes he committed if he’s convicted. Grace does not erase what he’s done. It doesn’t make it all better. It does, however, give him the opportunity to do the right thing. It makes it possible for him to have a second chance.

I recognize this isn’t necessarily a popular topic, and I’m okay with that.

It doesn’t matter who you are, or what you’ve done. God loves you, God forgives your sins (if you ask Him to) and He freely gives you grace. Knowing that God’s grace is freely given, that His forgiveness is for the taking, and His love is very real is not a ticket to commit crime. It is, however, the possibility of a second chance. It’s not even living a perfect, or blame free life. It’s knowing that you ARE human, and at some point – you WILL mess up. But, it’s the knowledge that God’s grace is sufficient to cover you, His forgiveness is available simply because you ask and make the choice to change, and His love – it’s yours because you are precious. You may not always feel precious, and you may not understand how anyone could love you – let alone the creator of the entire universe — but it’s true. You are loved.

Sep11

Not Being Alone – Grateful For Phils Friends

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Something I continue to talk about is not being alone. This journey is so much easier to walk through knowing there are others who love our four year old (and us) and care. From the very beginning, I determined this is nothing I was willing to do alone, or to allow her to do alone.

As such, we were blessed to be able to connect with an organization that reaches out to cancer patients of all ages. This organization, Phil’s Friends has been instrumental in blessing SO many people, or family included. Phil, who started Phils Friends after his own fight with cancer not once, but twice, has a heart of gold. His testimony is such an inspiration to us. God’s love and peace was so much a part of his healing, of his story, he started this organization with the hopes of reaching others who are struggling with this. His faith was strengthened through this process, and he aims to share the same strength and hope with anyone through this organization.

A few weeks ago, Janet received a care package from Phils Friends. I posted pictures at the time. It came at the perfect timing. In the times since, we’ve aligned with this organization to help them share hope in any way possible. They have brought Janet (and countless others) so many smiles. Smiles do a body good!!

Anyway, that said – Phil was in town with his family this past weekend. Janet and I had the honor of meeting him and his family. There were hugs and many smiles. In the picture, you’ll see a semi-funny picture not seemingly related. It just shows Phil’s heart. My air was low in my tire, so he insisted that he help me – as he wanted to make sure we were safe. So, he helped out. So, I had to take a picture. Anyway, Phil actually brought a special care package for Janet to give to one of her special new friends at the hospital. What better time, cause her next inpatient stay starts tomorrow!

I would consider it an honor if you would repost and/or share this with anyone in your sphere of influence. Go to their page, like it, and let them know we sent you! More than that, let others know about them. You can find out more at their website as well.  If you aren’t local, they will mail care packages out. If you know anyone who could use some love and hope, please connect them with the page. If you feel inclined to sponsor or help in any other way, please also connect with them. If absolutely nothing else, please pray for them as they reach out to others.

Sep6

With Heartfelt Gratitude – Introducing Shiloh Chiropractic

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Normally,  you won’t find me spotlighting a particular company or business.  The truth of the matter is this – Shiloh Chiropractic is so much more than just a business.  Once you take the time to get to know them, you’ll soon realize they are more like a happy (with a hint of crazy) family. They are so much more than a doctors office or any medical practice. They are real people with lives, families and hearts of gold.  Let me tell you a little but about how we came to know and love these people.

If you have read my blog before, you have undoubtedly heard at some point that I have a for year old daughter who is fighting a rare and aggressive cancer. During our hospital stay after her brain surgery, we were introduced to Make A Wish. That was a defining moment in this journey. Her diagnosis became very real right then and there. Of course, it was already much more real than we card to think about. However, to hear you’re child is qualified for Make A Wish just kinda does something inside you. Without dwelling on that though, I’d like to share a bit about how this process has become so much easier to walk through and deal with.

As our family meet with the team of wish granters, the process unfolded in a way that we were totally at peace. The team explained that one of them had been a part of this one chiropractors office that had recently sponsored a child with Make A Wish. In fact, the office had voice the desire to reach out and share hope in a real way with another child. They were seeking to bless another wish kid. They asked if we’d be interested in meeting the office to see if we wanted them to help with Janet’s wish. Absolutely. The next day we met the office staff that would become very much a part of our lives.

We met them, and instantly felt at ease, and at peace. These were people we could tell cared. They cared not only about Janet, but also about our whole family. They have truly connected with Janet, and with all of our family. They are sponsoring her dream to become a princess and meet princesses at Disney World. They will help that dream become a reality for her. While we are absolutely grateful for that, we have hearts of gratitude for many more reasons. They have not only become Janet’s sponsor, but also chiropractic care as well.

The funny thing is, is I wasn’t actively seeking chiropractic care for me. I had looked around previously, but never really felt comfortable or like it was time to start it again. I say again because I know the value and benefit of chiropractic care – even though it had been over a decade since I’d had that. I now know why I never connected with another office here locally. It was for such a time as this. I have always said that things sometimes just happen in their own timing, in the right timing, and for a purpose. There is always a purpose.

As unsure of a journey we are now walking, there are things in our lives that absolutely make the journey not only bearable, but peaceful. Truth be told, this office is that for us. They are helping Janet’s wish become a reality, but also helping in so many other ways.

I’d like to dive in and take a look at the office staff that makes up Shiloh Chiropractic. From each doctor, down to every single member of the staff, these people are awesome. They operate with care and compassion, and have flexibility as well. (A characteristic we’ve come to value much in recent history!) I mentioned this before, but they absolutely do have hearts of gold. They care about each individual who walks through their doors. I can honestly say – from my own experience, and from talking to other patients while in the office – they have a welcoming atmosphere that promotes the ability to rest, relax and rejuvenate – to be like an oasis. I feel like a welcomed guest, not just a number in some records somewhere that walks in. They seem to genuinely care about what they do, and about people – and it shows. They ask how you are doing, or how your day is going – and they care enough to listen to your reply. They give you the time you need, while also being there for many other patients through the course of the day.

It is with heartfelt gratitude that I say thank you to all of Shiloh Chiropractic for being who they are, and for all they do. We are sincerely grateful.

Aug15

The Hardest Kind Of Prayer To Pray

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If someone were to ask you if praying is hard for you, what would you say? I don’t know about you, but sometimes prayer time is hard for me. It is, simply because I’m learning that my will and God’s will don’t always coincide. The things I want sometimes aren’t what is His will. So, for me at least, I’ve identify one of the hardest kinds of prayers to pray as the UNSELFISH prayer – the one where you ask for God’s will to be done, and actually mean it.

I have a “for instance” example, as a carry over from yesterday’s post really. My daughter is fighting a rare and aggressive cancer. We are about to go to the hospital where she will be admitted for chemo therapy. She is four. I don’t get it, and certainly don’t understand why. When I pray, my prayer has been for her healing. For her to be cancer free, and not live with any amount of cancer in her body. None. However, I have also been praying all this is according to God’s will. A service at church, in combination with some sweet heartfelt words from a friend, made me dig deeper and realize that His will and mine aren’t always the same. Well, no kidding. However, if I pray for His will, I better accept and understand that it may not go the way I want. In this particular case, that may mean that my child may not live to adulthood. That is a heartbreaking and sobering thought on the one hand. However, on the other hand, there is great joy in realizing that she’ll get to commune with Jesus – that she would get to lay her head on His lap, and rest in the arms of Jesus. Something purely peaceful and joyous about that. I DO NOT want this as our story, BUT if it is to happen, I’ve realized that it’s best to not live in dread or fear of it.

I encourage you to pray with diligence. Ask and believe for God’s will to be done. There is nothing wrong with hoping that His will DOES match up with yours, but understand that it may not always. During the times that His will and yours aren’t the same, take a moment and pray for peace in the process. It won’t always be easy, but it will be rewarding. It is hard to see peace or joy when your situation seems hopeless, but I assure you – it is possible.

I encourage you to surround yourself with people who care about you, and who are willing to walk through life with you – through whatever you are facing. When you are struggling, or just don’t know how to handle the situation, pray. Ask others for help. Never be afraid to reach out. Help is there. Hope is real.

Please feel free to connect with me. You can send me a message via the “contact me” link, or by leaving a comment below. I monitor all methods of contact.

Aug14

Denial – That Land That Leads To Hurting And Hope

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Recently, I have had much time to thing. Ponder things. One such thing includes the much sought after question – WHY!?

The other day, I was having a particularly emotional day. I talked with several people – just because I have found the value in both connecting as well as asking for help. The help, in this case, was pretty much in the form of prayer. Nothing would change the exact scenario at hand, but prayer would bring the peace and courage to face it.

As I was chatting with a friend, I was speaking about my daughter. A friend of ours is also young (she’s 10) and fighting a battle with cancer. She is losing that battle, and has only been given a short time of life left this side of Heaven. That was particularly hard for me. I looked at the similarities with my daughter’s cancer and it got to me. My heart was broken, realizing the possibility that lies ahead with us. As I was chatting with my friend, it was noted that when I spoke about this, I simply could not talk about the possibility of her dying. I would mention it and say that “things might not go how we want” or “if one day she doesn’t make it” but it was pointed out that I didn’t seem able to face it head on and talk about it. My friend asked what I thought would help to get to the point where I could look at her situation, see similarities in other situations that might not be going well, and not get upset. How could I watch a friend with a daughter who is dying, and not let it bring me down to the point that it’s depressing because I liken it to our own situation.

It was a hard thing to ponder, much less identify. I did come to the realization that I was attempting to live in a land of denial. In my head, I realized that the cancer she is dealing with does not hold a good prognosis. She may or may not live and have the opportunity to grow up. However, I never have really dwelt on that. Nor had I ever allowed it go to from my head to my heart. I only saw it as a possibility. What I did not see it as was a possible reality. I had some pretty in depth conversations. Just looking at the facts, and realizing there is a possibility she could die was extremely hard. However, it has been helpful in that way to not live in denial. To not think and dwell on it to a point it brings me down is hard, but necessary. Well, it’s not necessary to dwell, so much as realize the possibility.

One huge thing for me to realize – even though I knew it – was that just because another child is dying (or even that seven or more children die every single day) as a result of childhood cancer, does not mean that will be the end of our story. Yes, my four year old daughter could die. However, having cancer is NOT an automatic death sentence.

The hardest part is to realize that death is a possibility. It is hard to fathom, and impossible to understand. However, just because it is possible doesn’t make it probable. We will pray for God’s will. I seriously hope His will includes her being completely healed – from the inside out. I hope His will includes her living, not dying – and going on to grow up and live a long life. I will not, however, live in fear and dread of the opposite. If, for whatever reason, my daughter does not “win” this battle with cancer the way we want to see it won, it does not mean God isn’t in control. My faith and prayer is for her healing. I pray that healing takes place while she is on earth. If not, my joy will come from knowing she beat me to Heaven, and will be able to spend time and be in the arms of Jesus. That’s actually a sweet and heartwarming thought. No, I don’t want it to happen, and I’m certainly not rushing to get there myself. It’s just a beautiful thought when you are able to look at death as not the final goodbye, and instead as the next segment of a beautiful journey in a different place.

If you are facing this, or any other similar medical diagnosis and just don’t know how to handle it, please feel free to connect with me. I have, by no means, got this all figured out. What I do have is peace. I have peace knowing that the outcome isn’t guaranteed – good or bad. I have peace knowing that my life, the life of every member of my family, is in His hands. The maker of the entire universe has us in His hands.

Regardless of your situation, I pray you can come to know the same peace. May the God of all creation hold you today.

Aug9

Never Doubt The Power Of A Spoken Word

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I just wanted to take a moment to share something that has become very important in my life.  People.  More specifically, connecting with people.

I want to share something with you because I feel that the entire universe needs to take this to heart.  Your words matter.  Words carry so much weight.  Something you may not think twice about may change the entire trajectory of a persons day.

Let me take you into the wonderful world of my life recently.  Things have  not been awesome.  To be honest, I have been pretty exhausted – all the way around.  But, it has been through connecting with people that I have been truly blessed.  Let’s take today, for example.

The past 24 hours or so just have not been the stuff dreams are made of.  There has been stress, hurt, heartbreak, unsolicited drama, etc.  But, there has also been peace, love, hope, healing, forgiveness and grace.  The fact that I had a not so awesome day is not what I am trying to spotlight here. What I am trying to explain is how the people in my life made a difference.

At one point, I reached out to a friend and just chatted.  I explained how my day had gone, and I was simply real and honest.  In return, I did not get a “oh, don’t worry sweetie, everything will be okay” response.  Instead, I got a “talk to me.  I don’t personally understand what you’re going through, but I am here to listen” sort of reply.  I was encouraged, and I was blessed.  

Through the kind words of friends just taking the time to be there, God infused peace, strength and joy where it was severely lacking previously.

The one thing I hope you take away from this is that your words – what you choose to say to someone – really matter.  Take the time to speak life.  Share love.  Be the friend you would like to have. Give the gift of yourself as a friend.  The blessing cannot be measured!

Jul28

Being Culture Changers

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Today, one of our pastors, Pastor Scott, spoke about being culture changers in a world where people generally care more about themselves, and those in their own direct sphere of influence. Being bold isn’t always a characteristic of importance to many people.

One question that continues to resonate with me is simply “What is at the top of your priority list?” Whatever that is – that is what your character will show. Do you care enough to be more than just a fan? Are you willing to get real – to get in the game?

Have we opened up our hearts and minds, and decided to be bold in the way we love people? Whether you attend this church or not, I encourage you to reach out and ask. Invite people to your church. Let them know you care.

If you are not part of a church family somewhere, I encourage you to find one. Get connected. Allow God’s love to infuse your life. Be challenged. BE the difference.

Well you be a part of something that will make a difference in lives around you?