Tag Archives: life

Life Is A Giant Roller Coaster Ride

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Are you an adrenaline junkie? Do you like roller coaster rides? I wouldn’t call myself an adrenaline junkie. However, I do love a good roller coaster ride. The ups are thrilling, the downs are scary. Together, they equal fun.

Thinking of roller coasters, I have come to realize that life is quite like a roller coaster ride – one we can’t get off of at will. If you’re anything like me, the thought is initially a good one. However, the ups and downs can be terrifying when you recognize that they are essentially never ending.

This is the trap I find myself in at the moment. I just want a breather. I want to do more than just pretend life will ever be any different.

The trouble with this, right now, is that I am finding it more and more difficult to grab a hold to those good times – for fear that the crushing and depressing times are just around the next bend. I recognize that it’s a function of embracing the moment – of loving life, right where I am. Truth be told, I do that. And at times, I am not able to.

Right now, I find that I am in the part of this eternal ride that is scary and feels almost like the cart will jump the rails, and crash. Sigh. I just want to break the cycle – and I’ve pretty much given up hope of even that possibility.

Is it too hard to ask – to just be able to raise my hands, yell with glee as I enjoy the ride? I think it is.

I’m not going to lie. I have come to really dislike the familiarity and predictability that the roller coaster ride brings. The highs and the lows – the ups and downs. The emotions and feelings that refuse to give up their grip.

So, here I sit – looking for the exit. There has to be one somewhere. So far, I haven’t found that elusive escape route.

Please, someone – please tell me this life still has the potential of love, hope, compassion and even freedom. Freedom to just live.

For anyone who will point me towards faith, counseling / therapy, talking it out, friends, is any other great coping mechanism – proceed with caution. I do stand on faith, seek help through counseling / therapy, I clearly ramble too much as it is – but I do talk when I can find friends to talk to. See, in theory, a great support system is in place. But, frankly, that system is broken. See my previous post. People sometimes don’t say what they mean, mean what they say – and their actions most certainly don’t match their words. Please don’t be that person.

So, as I sit here today, I just pray for the strength to keep going. Taking that a step further – I also pray that I continue to WANT to keep going. My fear, if I’m being honest, is that the voice of depression and grief that clouds my thoughts will grow louder than that of hope.

So, for better or for worse, that’s where I am today. Here. Breathing. With my heart still beating. Yes, there’s life yet to live.

We Hurt Because We Love

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I think this title is self explanatory. I also believe that it needs explaining. To make this very real and expose a few more of my own emotions, I’d like to share a bit about our personal journey – about the pain, loss and love.

As yesterday’s post made it painfully evident, my daughter has passed away. I can barely utter these words, let alone write them. That said, I want to concentrate on an idea that resonates deep within me.

Our pain wouldn’t exist if we hadn’t first loved.  Where there is great pain, there is a great volume of love.

It’s true. I loved my daughter with more words than are in existence. As such, I grieve her passing with more pain and hurting than words as well. The life she lived – though short – was incredible. And full of love. If you were to ask 100 people who knew Janet what the first thing that comes to mind when thinking of her, at least 90 of them would say her smile. This child loved and breathed happy.  No matter what she faced. This was made possible, in large part, due to love. She was surrounded by love, and made it her life’s mission to also love others. It is that love that makes her absence in physical form that much more painful. We love her, and we miss her. However, her love yet remains. It always will.

At what became her final moments of life here on Earth, she had many very profound things to share. She knew that people would be sad, but didn’t want them to stay in that sadness forever. Instead, she requested that everyone Remember The Love. And, though it is also etched with pain, remembering that love is our life’s mission. Love others. Be loved. Be the love our world needs. Yes, there will be pain – but it will be matched with love. Allow that love to lead and guide you instead of the pain alone.

A Lot Can Happen In A Year

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If the truth is known, I have no idea even where to start. I came to realize it has been a long time since I have shared here on this page. Too long. Over a year. As such, I also know it’s not wisdom to make some promise to write every day, or heck – even every week.  Though I might do that, I reserve the right to also say that I might not.  What I do know is that I have missed sharing life with you.  So, as such, I want to share where things are right now. This may not be a very long post today.

For those of you unaware, my life and my family’s lives were thrown upside down about this same time, three years ago. We were notified that our little Janet (then 4 years old) had an aggressive brain tumor.  Three years ago, our lives changed. For three years, she courageously fought a disease that would eventually claim her life.  Yes, her life. At 7 years old, my little girl breathed her last breath this side of Heaven. She passed away February 13, 2016 – just over two short but excruciating long months ago.

Truth be told, much of the previous year was dedicated to fighting childhood cancer alongside her. Now that she is gone, that fight is far from over. I proudly stand with others who are fighting, rejoice with those who have finished treatment and live to share their stories, remember the heroes who have their ultimate and eternal healing, and pray for all who stand beside them. None who walk this path are alone. This is a fight that I continue to fight – not just because my daughter died – but also to help ensure other families do not have to walk this same heartbreak.

If you have played a part in our journey – whether small or huge – know that you are greatly appreciated. Please continue to share your love and support – your thoughts and your prayers. They sincerely mean so much.

 

What It Looks Like To Lose Your Identity – From Bipolar To Cancer Mom To…

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As this title might elude to, I’m about to share a little bit about what it looks like inside my head. Buckle up. This is going to be a fun ride.

My blog has not been active in some time. I’m not going to make some promises to post a certain amount a week or month, or anything really. I am going to write from my heart. It may be multiple times a day, and it may be only once in a blue moon. What I can tell you is that I have been struggling – not for words, but to figure out who I am. Let me explain.

As you know, or may not know, my five year old daughter has been fighting cancer. She had a brain tumor removed from her head. She had daily radiation for six weeks, and she then had a high dose chemo therapy regimen. To make a long story short, they threw all they had at it, with the hopes that something was the right answer. You see, the cancer she had growing was literally thought to be one of a kind. Her tumor and info was sent all over the place, in search of second, third or tenth opinions. We’re talking worldwide experts. No name for this unique thing. As such, we held our breath, and above all else, prayed. This past January, she completed treatment! Thank God! In February, her scans showed no evidence of the disease. It showed the cancer didn’t appear to have even ever been there! Again, thanking God!! Then, in May, her scans showed spots on her spine. Those spots were consistent with drop metastasis. In other words, it looked like a cancer that had metastasized and spread to her spine. But, there was a silver lining – it also might NOT be that. It could just be enlarged blood vessel(s) and we had no way of knowing for sure at that point. Even if it WAS cancer, it would have been too small to do anything with, or biopsy, etc. So, we wait. Three months, and we wait. Tomorrow, actually, she will have more scans to look and see what we are dealing with – which, obviously, we hope is nothing. In fact, our prayer is to have the scans, and see NONE of the spots previously seen.

That was the back and lead up explanation to what I am about to share with you. I can pretty much say that I am a picture perfect example of what it looks like to lose your identity.

One more back story. Many of you know, and some of you don’t. However, instead of hiding behind a mask of “everything is okay all the time” I want to be transparent about something. I was diagnosed with bipolar disorder. Okay, fine. Go look it up. No, wait…it’s best you don’t. That said, it’s something – just the diagnosis – that I struggled with for a very long time. Years. Until recent history that I really figured out that it was just a diagnosis. It was not me. It is part of who I am, but not my identity. At least I thought. I do struggle with depression. I have also learned that I’m not alone in that. Depression is a real thing. It affects more people than you’d realize, or even care to think about. It hurts. Again, it became my identity for some time.

So, through these two examples alone, you can see that my life is definitely not boring. There are times, I long for a much more boring time.

The issue and problem is that we often will allow life’s circumstances – those curveballs that life tosses our direction – we often allow those things to define us. They become who we are. They become our identity. Then, when life changes, or circumstances take on a different shape, we tend to lose a part of ourselves. At least, it’s clear that I do. Let me explain.

When my daughter was diagnosed with cancer, I became a cancer mom. I became a cancer awareness fighter. I became a voice for children who battle childhood cancer. I became a person who spent more time in the hospital, even during holidays, than at home – at least it seemed at times. I realized that we had almost a second home away from home. Childhood cancer. It was who we became, and the fight we fought. We lived and breathed it (through all the tests, scans, hospital stays) with every breath. Then, THANK GOD, my daughter had clean scans. No evidence of the disease. No more daily / weekly / monthly tests, scans, radiation, chemo, etc. No more hospital stays. No more cancer, right now. Of course, I was elated. Beyond all measure. My daughter was free to live, breathe and run around and just well, be a kid! Yes, she would struggle with the aftermath of having had radiation and chemo, but she was HERE. She is alive!

But, now what!? Now where do I go? Now, who am I? These are all questions I never actually ASKED, but realized were present – asking themselves. I have come to realize that my identity was set in those things. It, rightfully so, consumed my days. Now, though – now that she is not fighting this disease, what’s a girl to do? I have to embrace this “new normal” as life again. I have to figure out what our current “normal” is and go from there. I won’t lie. It’s not easy. It is, however necessary.

I have, just in the past couple of days, sat down. With myself, and with my thoughts. I dug deep, and thought clearly – back to a time where I felt okay, good even. What I came to realize wasn’t shocking, but it was good to remember. I was the happiest when I was reaching out to others. When I took my own time, and gave it to others. When I took time, became a volunteer, and just reached out to others – helping THEM smile, it helped me. My hurting heart was calm again. It would bring me joy to see joy in someone else’s face. To know I had made a difference – that made a difference in ME.

So, two days ago, I went back to one place where I have felt me. I went to the YMCA. We have long since (over a year) not had a membership. Recently, my husband lost his job, and so a YMCA membership was something we couldn’t fathom, let alone afford. Still, though, I had to connect. I asked if I could volunteer again. I asked if I could just reach out, even during times that I might be hurting, because people (myself included) need people. I mentioned that I know God created us as community people, and I need that too. So, I turned in a volunteer application packet, and will soon be able to volunteer. I guess, to some, it may seem odd to be so excited about the ability to donate my time to make a difference in this community, and in other people’s lives. But, it isn’t at all silly. It’s real. I firmly believe that the heart of a hurting person can be brought so much joy from reaching out and serving others in such a way that life becomes about someone other than themselves.

I’ve learned that I may not have a rock solid identity, but I do know that there are things that make a difference. My purpose, through it all, however, remains. My purpose is to share smiles, and to share hope. It is to realize that in my not being alone, NO ONE in the world needs to feel alone. People – every person alive or dead – is or has a story. Every person alive is a living breathing story. Their story matters. Their life matters. THEY matter. That, and their story isn’t finished being written yet! The current chapter is JUST ONE chapter in a much larger – yet to be completed – book.

If you made it this far in reading this blog post, know that you have my gratitude. If you are hurting and not sure what your purpose in life is or where to find your identity, hold on. You’re still there. You’re still you. Don’t give up. YOUR life matters. Your hopes and dreams matter. Your story isn’t finished. Don’t give up! If you are hurting, or just want to chat, please don’t hesitate to seek help. Know, also, that I’m happy to talk it out if you’d like to post below or send me a message via my “contact me” page. I am grateful to not do life alone, and would be honored to walk alongside you in your journey as well!

Support And Love In The Midst Of Uncertainty

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Support and Love. These are two things I’ve always known about, and always “preached” about helping others out with in whatever times of need they have. Not until what we have going on medically with my daughter did I have the occasion to feel this side (the receiving end) of said love and support.

If you know someone who is going through something you consider to be unimaginable, please reach out in love. What you don’t realize is that it will likely mean the world. I can speak from experience on this topic.

As we are walking down this road we don’t want to be on, awaiting a definitive diagnosis on what may be going on with my daughter, I thank God for His hand in this entire situation. It is evident in so many ways. My gratitude is for the people God has in my life, and for the friendships and relationships that are being cultivated, even in the midst of everything going on. God’s love, and His heart is surrounding my family. My faith and strength from God through all this literally sustains me.

There are moments, and there are times that I wonder where the strength to keep going will come from. It is during those moments where God’s presence becomes so real to me. It isn’t because of anything I’ve done, but rather because He has me surrounded by people who care. I’m learning that I’m not in this – any of this thing called life – alone. Instead, I’m surrounded by much love and support. Like I have said many times before, it’s okay to not always be okay. It’s okay to need help, and it’s okay to reach out. I step out of my comfort zone when I do, but I’m grateful that God has given me the gift of friendship and relationship.

With regards to what all is going on, several people have asked if there is anything new, or if there is any specific way to pray. Right now, we are still waiting on a definitive answer. What we know is that my four year old daughter had a high grade polyphenotypic brain tumor. She had surgery two weeks ago, and both the pathology as well as genetic results are still not giving a full and complete answer. They are leaning towards either medulloblastoma or anaplastic ependymoma. The problem is, is that her results don’t fit either one specifically. It has been said that her situation medically has presented like this before, but rarely. So, samples have been sent for additional specialist consultation, and we should have those results soon. What we know is that we are essentially looking at our worst case scenario, but with some sort of rare twist. She will be starting chemo and radiation within the next two weeks or so.

As bad as all that sounds, I want you to know a couple of things. First, we are standing in faith for her complete healing and full recovery. That said, we realize that healing comes in many forms. All of that in mind, the one thing I want to stress is that no matter what the situation, and how dire it may look at times, God is still God, and He is still Good. With that, He IS in control. I don’t always understand why, or like what is going on, but my daughter is in His hands. It is out of my control…but the beauty of it not being in my control is that it IS in His capable hands.

Thanks for your continued love and support. It’s an honor to do life alongside all of you.

365 Moments Of Gratitude – ON HOLD

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I just want to let everyone know I’m still here.  I do have much to be thankful for in life, but my heart isn’t in writing this “365 Moments” segment every day right now. I know I will do it again, but right now I have to simply collect my thoughts, and take care of my family.

I will post an update hopefully here soon.  In the mean time, I want you each to know how very much I value your friendship, and especially your prayers.

365 Moments Of Gratitude – Thankful To Have Known Him

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Here is a fair warning to those of you reading. Today’s post will be personal in nature, and not bright and cheery. It is, however, life. Life is unpredictable, and life carries no guarantees. Today I got a very sad telephone call, and it has caused much reflection on my part.

You see, my best friend (spanning decades now) sent me a message to let me know that they had bad shocking news, and that I needed to call. I know her well enough to know this was bad. My heart was heavy. So, I picked up the phone and called, and learned that my lifelong friend – that her brother unexpectedly passed away this morning.

While there is no part of me thankful for his passing, I AM ever so grateful to have known him. George was a unique soul. He was fun, twisted even. He had such a warped sense of humor. He was one those people who always had some new or ingenious way of putting a smile on your face. Growing up, we very much enjoyed picking on him, playing jokes, and just generally being silly. He was a silly human being, turned into a daddy, and also a husband. He knew the meaning of love, and loved his family like no tomorrow. While he always enjoyed being unique, there wasn’t anything he wouldn’t do for his family and friends. His passing away took everyone by total and complete surprise. He had just celebrated his 42nd birthday. My heart breaks with my best friend, and her entire family. Today we said goodbye far too soon to a friend, a brother, a daddy, a husband, and a son – an amazing person we all knew as George.

Thank you for taking the time to read about my friend today. As I mentioned, it breaks my heart that he is gone, but definitely thankful to have known him.

For those of you reading, if you have lost someone close to you – know that my heart goes out to you. I’d love the opportunity to pray for you, or to talk about your loved one. Please feel free to leave a comment or send me a message via my “contact me” page. I look forward to connecting with you.

Also, I’d like to take this moment to encourage you to do something I hope you already do regularly. Hug your loved ones. Tell them how much you care and love them. Never go to bed angry, and love like there is no tomorrow. For some, that is all too true. Tomorrow isn’t a guarantee. Live and love.

365 Moments Of Gratitude – Thankful For Courage

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Courage comes in many shapes and sizes. It is often difficult to walk in, but a necessity for moving forward. There are so many things in life that require some level of courage – stepping out in faith when the end result isn’t a guarantee.

What may look to you like common sense might be a huge act of courage to another. There are days that it may take courage to get out of bed and face the day. There are times you might need courage to stand up for what is right. Your reality might sometimes include needing courage to just reach out and let someone know things aren’t alright. And, you know what? That’s okay! It’s okay to not always be okay.

If you are in that place today, and you feel like all hope is lost, know that you are not alone. It doesn’t make you broken, it makes you human. Smile, and know that you are loved – and that you matter. I encourage you to reach out. It might just surprise you to see the hands that would reach back. I’d be happy to pray for/with you. Feel free to leave a comment below or to send me a message via my “contact me” page.

I’m thankful today for courage – in all it’s shapes and sizes. I pray for more of it, and for each and every one of you reading this – because life isn’t always going to be easy — but you CAN do it!

365 Moments Of Gratitude: Thankful For A Reminder – It’s Okay To Not Always Be Okay

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Yes, it’s true. It’s okay to not always be okay. There are times in all our lives that life isn’t perfect. It’s what we do during those times that dictate how the next 20 minutes (or day/week/month) will go. This is on my heart because I just realized how not okay I am right now. Don’t get me wrong. I will be fine. This happens from time to time – for one reason or another – and I deal. I realize that how I feel right now is temporary, and as such, won’t last forever. I’m pretty sure I’m not alone in this, and that it’s one of those part of human nature.

That said, it’s what I’m choosing to do with this that I believe will make the difference. I will be open and transparent, and also reach out. I’ll ask my friends in real life, and those of you who are reading to stand with me. I will not stand alone.

If you are curious – there are a variety of things going on right now that are making me think and/or feel the way I do in this instant. Part of it may be a random chemical imbalance. Part my be my crazy thyroid. Part may be a pending medical issue. Part may be transition. Part may be things completely out of my control. Moral to the story – all these parts add up. They do for me, they would for you.

It’s my choice to see a God larger than life in the midst of it all. It’s my choice to also just be honest and let you know – it’s okay to not always be okay. During those times, I encourage you to do what I am doing – reach out. You aren’t alone. Neither am I. If you have taken the time to read this, please know that I am grateful for you, and for your friendship and prayers. Please know it is reciprocal. You are loved, friends!

Spotlight on Chris Lockwood – Coming Alive: I’m Still Standing

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Did you know that Chris Lockwood has a new EP out? Have you purchased / downloaded his Coming Alive EP? You can find out more at his website.

I can’t think of enough words to adequately describe this music. Full of heart and passion. My goodness – some phenomenal talent. The vocals and music are amazing. I will share my thoughts on the other songs on this EP as well, but this song – man, it’s good! The raw emotions – the perseverance – the fight — so real.

Do you ever feel out of place – like the new kid on the block? Like an outsider peeking in?

This song tackles the idea that life isn’t always easy. It isn’t always going to be smooth sailing, and you won’t always want to plaster on a fake smile. There may be times where you look around, eager to grasp onto anything – anything at all – that will give you strength. You may realize that things that were once of paramount importance are nowhere to be found. The question is – will you give up?

There will undoubtedly be times when you look around, and simply do not like what you see. Even when it seems like your world may come crashing down around you at any moment, never give up. Don’t ever allow life’s circumstances to get to you to the point that you lose your footing. Stand firm. Even if you find yourself staring life in the face, and feel like you’re losing that staring contest, always remember hope — and to stand. Keep on standing.

Never give up. Life’s not always going to be easy, but keep on standing.

Chris – I just want to thank you for creating this EP. Talk about moving and powerful. It really speaks volumes, on so many levels. You, my friend, are an inspiration.